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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board


Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index


Re: RSD Spreading
Mar 16, 2009
It can spread at any rate. Some spread quickly,as in a matter of days or weeks, some it's a few months,it can take years for others. There is no "set" timetable on rsd spreading.

For myself, I had full body rsd in 11 months. Well, it would be more accurate to say I had it in all 4 limbs and hips and tops of shoulders at that point. In the last 2 years it's gone into my whole back and a bit in my face. I've known people that had it spread in all the time periods I stated above.

Generally, the longer it goes untreated, it gives your nervous system time to become very disfunctional and to spread. I see you'll be getting a block. I'd like to say I really hope it does something for you,but I feel I also need to say it's been well over a year since rsd began and it may not have any effect on your pain at all.

There are 2 "types" of pain in rsd,SMP and SIP. SMP is Sympathetically Mediated Pain and Sympathetically Independent Pain. Again, I must stress, that we are all different and therefore it takes different times for it to go from one to the other. If you do not get any relief from the block, it will most likely be because your pain is now SIP. Further blocks won't likely help you either.

I'm so sorry that you've had to go through so much. I'm especially sorry over the "loss" of your boyfriend. The best thing I can suggest is to have your family read and research rsd themselves so they can begin to understand it. Possibly have a family member go with you to a doctors appt and have the doc explain it to them might also be helpful as well.

Feel free to ask any and all questions and also just vent,scream,yell whatever you need to do. We all definitely understand what you're going through and feeling.

Hugs,

Karen
Re: RSD Spreading
Mar 16, 2009
[QUOTE=Gaollan;3921878]It can spread at any rate. Some spread quickly,as in a matter of days or weeks, some it's a few months,it can take years for others. There is no "set" timetable on rsd spreading.

For myself, I had full body rsd in 11 months. Well, it would be more accurate to say I had it in all 4 limbs and hips and tops of shoulders at that point. In the last 2 years it's gone into my whole back and a bit in my face. I've known people that had it spread in all the time periods I stated above.

Generally, the longer it goes untreated, it gives your nervous system time to become very disfunctional and to spread. I see you'll be getting a block. I'd like to say I really hope it does something for you,but I feel I also need to say it's been well over a year since rsd began and it may not have any effect on your pain at all.

There are 2 "types" of pain in rsd,SMP and SIP. SMP is Sympathetically Mediated Pain and Sympathetically Independent Pain. Again, I must stress, that we are all different and therefore it takes different times for it to go from one to the other. If you do not get any relief from the block, it will most likely be because your pain is now SIP. Further blocks won't likely help you either.

I'm so sorry that you've had to go through so much. I'm especially sorry over the "loss" of your boyfriend. The best thing I can suggest is to have your family read and research rsd themselves so they can begin to understand it. Possibly have a family member go with you to a doctors appt and have the doc explain it to them might also be helpful as well.

Feel free to ask any and all questions and also just vent,scream,yell whatever you need to do. We all definitely understand what you're going through and feeling.

Hugs,

Karen[/QUOTE]
Thank you for a fast reply one thing on my side is I have fantastic doctors trying to do what ever they can for me. The pain is a deep dull pain to nerve stabbings, muscle spasms, muscle cramps, the only thing thats happening is it's a nightmare that keeps getting worse. I still work part time but recently I have been getting so much pain in my left leg right under my hip I almost can't stand. I have used most pain killers and have had allergic reactions from all of them. Lidoderm patch caused a purple like rash all over my right arm and entire back and legs. I saw a PM for an evaluation for a nerve block and it will done sometime next week on the left side of my neck. The pain is constant it never stops I am interested in finding a local support group I thought maybe being around others with this could help it certainly wouldn't hurt.





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