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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board

Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index


My RSD started in my shoulder (maybe with my injury in Nov 06, or perhaps after my first rotator cuff surgery the following May. I had a second rotator cuff surgery almost a year later). At the beginning of last winter the RSD quickly spread to my cervical spine and the back of my head and I started getting horrific headaches. It didn't take long for my hands and feet to become cold and numb and tingly most of the time - it feels like I am walking on bricks and typing on concrete most of the time. I need to sleep with gloves and 2 pairs of socks and an electric heater to get warm enough to fall sleep. I also take Ambien CR because my head hurts so badly when I lay down that I have trouble sleeping at all. My legs used to burn so that I couldn't sit down unless I was on sitting on the end of the chair, but since the weather started to get a little warmer here in RI that only happens once in a while. I get the flushing of the whole upper body at times also, usually later in the day and when I am anxious or angry or when the weather is cold/wet/windy.

Is this what is considered whole body RSD?

I have a new symptom this week which is scary - my lower left back - the opposite side of the trunk where my RSD started - aches terribly deep inside. I don't know what it is all about...I don't remember pulling any muscles since I don't do a lot of heavy duty chores anymore.

As always, your thoughts and/or comments are deeply appreciated. Have a good one everyone, sandy

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