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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board


Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index


[FONT="Comic Sans MS"][COLOR="DarkOrchid"][SIZE="3"]Hi all, I am so glad to have found you. I have read through all the messages. I know I was tired at the time but I don't recall anyone talking about the pain that comes with the coldness. Last August I started with a painfully cold left hand. Within weeks both hands and forearms were cold. My feet and calves are also cold. Does anyone else experience this? I hate being cold, but the fire makes me feel ill - lightheaded and nauseaus. Thank goodness I get the cold more than the heat.

I don't have diabetes. I do have celiac disease and Hashimoto's thyroiditis. I recently had skin biopsies - one at the ankle and one at the thigh. The results confirmed small fiber neuropathy. It also confirms autonomic neuropathy. My body temperature swings some days. I usually run around 97.3 degrees. One day it was 95.1 and there was nothing I could do to get warm. The last spell the temp was 96.3 and then dropped to 95.9. Anyone else so afflicted?

I have a problem with drugs. I was seen every three months, fed lortabs, lyrica, topamax, and told I was an enigma in a conundrum. All that did was get me hooked on lortabs, allergic reaction - laryngeal edema - to lyrica, and topamax literally sent me out of my mind. The times of withdrawal were horrible. I can't take NSAIDS. Celebrex - my brain must have thought I was a teenager as I had suicidal thoughts and had to get off of that. Ultram does a number on my stomach which already has a problem.

I am able to use lidoderm patches for pain and that's about it. I take baclofen for spasticity and klonopin for myclonic jerks and lunesta to sleep. I have heart problems - SVT, PAT, PAC for arrhythmias as well as coronary artery disease, carotid artery disease, and PAD.

I have been on crutches for four years - bad feet, bad balance, and lots of falls got me there and keeps me there. My right foot has had three surgeries for the same thing and is most unhappy 4 months after the last surgery.

I was interested in reading about fatigue. I do have a definite energy problem. Exhaustion can come on quickly and far too easily for my liking. Is this part of SFN? I was dx with fibromyalgia in 1985 and at this point I don't know if I have it or not due to all the problems I have. I will be seeing a movement disorder specialist in NYC in a few weeks probably for some form of dystonia.

Thanks for all the information I have learned from you and I look forward to learning more. My apologies for the length.[/SIZE][/COLOR][/FONT]





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