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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board


Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index


have you tried lyrica i am on it for neuropathy and fibro myalgia i couldnt stand the neurontin and was on the cymbalta i became immuned to that quickly i hope it helps
I take lyrica along with 2 other drugs for the neuropathy. Within a week of being on lyrica my pain had decreased by at least 50%. I hope that you are starting out on a low doseage and working up. I started out at 75mg 2x a day but as your body gets use to the drug it is neccessary to increase the doseage. I have been on lyrica since jan. 2007 and now take 200mg 2x a day. Alot of us want to give up on the medicines too fast b/c of the side effects so give it at least 2 weeks. One thing that has helped me with the lack of energy is getting a B12 shot each month. I was very surprised and pleased with the result.
[QUOTE=anwise67;3972107]doodlebugsnana, I take lyrica along with 2 other drugs for the neuropathy. Within a week of being on lyrica my pain had decreased by at least 50%. I hope that you are starting out on a low doseage and working up. I started out at 75mg 2x a day but as your body gets use to the drug it is neccessary to increase the doseage. I have been on lyrica since jan. 2007 and now take 200mg 2x a day. Alot of us want to give up on the medicines too fast b/c of the side effects so give it at least 2 weeks. One thing that has helped me with the lack of energy is getting a B12 shot each month. I was very surprised and pleased with the result.[/QUOTE]
As I had stated in my previous post, I have been diagnosed for 6 years but have been dealing for 10 years, a lot longer than most people on this forum. I started on Lyrica 75 mg daily then went up all the way to 200mg twice daily. Since my illness has gone on so long, it really never helped much. I recently went on Neurontin from Lyrica because of the cost and my fear of losing my job in an unstable economy, but because of my SFN. Needless to say, I was on Lyrica for 6 years, never gave up on it. Neurontin is cheaper.
[QUOTE=Bobby Flay;3973018]As I had stated in my previous post, I have been diagnosed for 6 years but have been dealing for 10 years, a lot longer than most people on this forum. I started on Lyrica 75 mg daily then went up all the way to 200mg twice daily. Since my illness has gone on so long, it really never helped much. I recently went on Neurontin from Lyrica because of the cost and my fear of losing my job in an unstable economy, but because of my SFN. Needless to say, I was on Lyrica for 6 years, never gave up on it. Neurontin is cheaper.[/QUOTE]

Hi everyone,
I'm new here. Just got back from the Cleveland Clinc yesterday (second visit). Was diagnosed with SFN and of course polyneuropathy. I have problems with both hands and both feet and am starting to have facial symptoms (forehead and nose). The right side is worse than the left at this time. I am returning for further evaluation in a few weeks. I have burn thru pain in my right hand ( the hot poker feel on the top of it) and it gets worse with repeated use.
Does any one else have more problems when you repeatedly use the affected limb?
I am taking neurotin, 1200mg 3 times a day and am still getting burn thru so I guess at some time it will have to changed.
Anyhow, just kind of rambling on this first post - very glad to find a place where people understand firsthand.:D
Thanks to all who have responded to my previous post and to all who have shared their experience in the last few days. Welcome to idunno and kevin 57. This board helps a lot to feel less alone and to know others don't get much care from their neurologist. We are not wacko hypochondriacs. I am in minimal pain right now, especially compared to other's experience, but am trying to get through the fogginess and other effects of taking gabapentin (300 mg 2/day). Has anyone experienced better results with Lyrica over Gabapentin? I started on Cymbalta about a week ago too, but think my bad effects are from the gabapentin. I tried not taking a sleeping pill last night (Temazepan) and got little sleep, not because of pain but my brain seemed to be getting flashes of unconnected images and my shoulders and feet would jerk periodically. Kevin 57, I don't find that repeated use of a hand or foot has any effect. In fact, for me, so far, walking is not any more painful than just sitting (maybe because I think about the pain when sitting?). Does anyone else feel this way about sitting vs walking?
[FONT="Comic Sans MS"][COLOR="DarkOrchid"][SIZE="3"]Hi all, I am so glad to have found you. I have read through all the messages. I know I was tired at the time but I don't recall anyone talking about the pain that comes with the coldness. Last August I started with a painfully cold left hand. Within weeks both hands and forearms were cold. My feet and calves are also cold. Does anyone else experience this? I hate being cold, but the fire makes me feel ill - lightheaded and nauseaus. Thank goodness I get the cold more than the heat.

I don't have diabetes. I do have celiac disease and Hashimoto's thyroiditis. I recently had skin biopsies - one at the ankle and one at the thigh. The results confirmed small fiber neuropathy. It also confirms autonomic neuropathy. My body temperature swings some days. I usually run around 97.3 degrees. One day it was 95.1 and there was nothing I could do to get warm. The last spell the temp was 96.3 and then dropped to 95.9. Anyone else so afflicted?

I have a problem with drugs. I was seen every three months, fed lortabs, lyrica, topamax, and told I was an enigma in a conundrum. All that did was get me hooked on lortabs, allergic reaction - laryngeal edema - to lyrica, and topamax literally sent me out of my mind. The times of withdrawal were horrible. I can't take NSAIDS. Celebrex - my brain must have thought I was a teenager as I had suicidal thoughts and had to get off of that. Ultram does a number on my stomach which already has a problem.

I am able to use lidoderm patches for pain and that's about it. I take baclofen for spasticity and klonopin for myclonic jerks and lunesta to sleep. I have heart problems - SVT, PAT, PAC for arrhythmias as well as coronary artery disease, carotid artery disease, and PAD.

I have been on crutches for four years - bad feet, bad balance, and lots of falls got me there and keeps me there. My right foot has had three surgeries for the same thing and is most unhappy 4 months after the last surgery.

I was interested in reading about fatigue. I do have a definite energy problem. Exhaustion can come on quickly and far too easily for my liking. Is this part of SFN? I was dx with fibromyalgia in 1985 and at this point I don't know if I have it or not due to all the problems I have. I will be seeing a movement disorder specialist in NYC in a few weeks probably for some form of dystonia.

Thanks for all the information I have learned from you and I look forward to learning more. My apologies for the length.[/SIZE][/COLOR][/FONT]





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