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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board


Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index


Hi Lunessa,
My RSD started with an left foot ankle injury (Aug. 2006) and surgery (Feb. 2008)

Now I get burning in both feet and legs and also in my mouth and parts of my face....
The Neurontin helps, elevating my legs, epson salts lotion ( I got it online--it's called Epsom-it) and as of late I've been doing warm water aqua therapy in a 92 degree therapy pool one or twice a week which has been sooooo helpful, both physcially and mentally. I work full time and I have bad days and horrible days and some good days.

I also take 2000 mg of vitamin C every day and a vit. B12 , B6 folic acid supplement. I don't know how long I've had the RSD..but I was formally diagnosed 8 months ago..
Walking is very hard for me, and this has changed my life, my identity, etc......I see a pain psychologist and this helps a lot!! (but nothing will take the place of walking along the beach...)

What kind of pills are you taking that aren't working for you?
Have you talked to a pain management doc about changing your meds? I hope you are getting some physcial therapy....if not, ask for it!!
I hope your RSD stabilizes and don't give up the hope of it getting better!
There are some terrific people on this board...so supportive and kind.
Wishing you well,
hugs, Tigerlily





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