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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board


Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index


Re: Crps?
Nov 24, 2010
Hi afadave2, Wow your symptoms are so like mine, everything. I had foot surgery dec 09,
immediately I had numbness and couldnt bend flex wiggle my toes, could only move foot inwards and downwards, went to neuro was dx with dropfoot and peripheral neuropathy, then had severe color changes red to deep purple, hypersensitivity set in, went to ortho he said rsd set me up with physical therapy and pain management I did physical therapy 3 x's a week for 12 weeks I can now lift my foot up, but my toes dont move I have lost that forever, the pain has become very intense a burning like someone has peeled back several layers of skin and poured alchohol on it, stabbing pains, tugging pains and the horrible bone pain. I am taking neurotin, vicodin, catapress patch, and elavil. My pain management doctor immediately started doing sympathetic nerve blocks, I got some relief but for 3 days only. My RSD has spread up my entire leg and to both hands. I just did a trial for the spinal cord stimulator last week, which helped alot. My docs office called today and said the insurance company approved the permanet one yeah. The EMG on someone with RSD can be very cruel and I would not do it. they could not finish the test on me because of the hypersensitivity and I was in a horrible flare for about 10 days afterward. You should be doing physical therapy have the doctors mentioned that? do it right away like I said I have lost the movement in my toes forever. Good luck .
kelly
Re: Crps?
Nov 26, 2010
[QUOTE=kellyevans40;4629838]Hi afadave2, Wow your symptoms are so like mine, everything. I had foot surgery dec 09,
immediately I had numbness and couldnt bend flex wiggle my toes, could only move foot inwards and downwards, went to neuro was dx with dropfoot and peripheral neuropathy, then had severe color changes red to deep purple, hypersensitivity set in, went to ortho he said rsd set me up with physical therapy and pain management I did physical therapy 3 x's a week for 12 weeks I can now lift my foot up, but my toes dont move I have lost that forever, the pain has become very intense a burning like someone has peeled back several layers of skin and poured alchohol on it, stabbing pains, tugging pains and the horrible bone pain. I am taking neurotin, vicodin, catapress patch, and elavil. My pain management doctor immediately started doing sympathetic nerve blocks, I got some relief but for 3 days only. My RSD has spread up my entire leg and to both hands. I just did a trial for the spinal cord stimulator last week, which helped alot. My docs office called today and said the insurance company approved the permanet one yeah. The EMG on someone with RSD can be very cruel and I would not do it. they could not finish the test on me because of the hypersensitivity and I was in a horrible flare for about 10 days afterward. You should be doing physical therapy have the doctors mentioned that? do it right away like I said I have lost the movement in my toes forever. Good luck .
kelly[/QUOTE]

Kelly,

I was diagnosed with CRPS Type II (RSD) in May of '09. Its been over a year, and right now things are manageable for me. The good thing was they caught my condition early. I went to pain management at the Naval Hospital and did two lumbar sympathetic nerve blocks, along with physical therapy, and medication. Things have calmed down for me. I still have numbness, tingly sensations, cold skin, and color changes, but i can manage, function, and carry on with my life. I too still have loss of movement in my foot/and toes.

I believe i'm one of the fortunate ones that things have somewhat recovered. Not everyones symptoms subside, but i will say in your case, give it some time. It took me about a year - a long and painful year. Stay away from any tobacco products, alcohol, etc. They impede nerve regeneration. Additionally, keep active with your physical therapy. Force yourself to move the affected area, and use it as much as you can. That helps. Also, I would take water and rice grains and pour over my foot to get the nerves sensativity back in order and get it used to stimulus. Try that as well.

good luck and stay strong!





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