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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board


Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index


Hello Everyone -
I try to not complain, and I try very hard to be optimistic but I gotta talk to you. I'm am SOOOO TIRED of sweating! I'm very overweight (200 pounds) due to the lack of exercise (RSD is in both feet) and the RSD meds. Okay, so anyway -- It seems like all I do is sweat, sweat, sweat and I'm getting disgusted because it drips all the way down the middle of my back. I usually just change my top. I've got longish hair too, and it's wet at the back of my neck all the ou -- Gross!
Was wondering if any of you experience this --
Thanks very much!
Deb
Deb,

Yes I know first hand what you mean. I hate it too. It can be very gross to have to continually change your shirt because sweat is dripping like you just ran a marathon. I have rsd/crps in my left leg and do get sweating. My doctor has told me that when your body is in extreme pain all the time that your sweat glands grow and you can make more so that your body can try and "sweat out" the pain. There is not much that can be done about it either. You can see a dermitologist and possibly get prescription deodorant to help. Loose clothing can help and also cotton or breathable fabrics can make a big difference. It's just one of the many things that go along with having rsd. I personally go through it and have talked with many people who have the same issue. I've heard of cool compresses helping some people depending on where the rsd is and if you are cold sensitive. If you can handle it just use a cool rag for around your neck. Don't forget to drink plenty of water,not just water but COLD water. The cold water helps to cool down the body from the inside out. Sorry for your issue but know that you are not alone.
Deanne
[QUOTE=RoseinSanDiego;4020011]Hi Deanne,
Thanks so much for your reply. It was so kind. I will definitely drink more COLD water. It's weird, I have RSD in both feet/ankles but the sweat literally drips down the middle of my back by about 10 am each day and I don't start working until 8. A few said that their RSD parts are the ones that sweat, but I don't have RSD in my back and yet that's what sweats, plus my neck -- That's why I'm giving thought of cutting my hair to a short bob, maybe. My feet are REALLY hurtin/achin today. I'm cleaning the grout of our kitchen floor and man oh man, it's so dirty. I use the summer to try and get the house in order so I am usually pretty busy getting things organized, cleaning things, etc etc. Sounds dull & boring, but I do appreciate the time to be able to get things done. My elbow is tennis elbow, although I don't play tennis since my high school years (I'm 49). My RSD doc sent me to ortho doc and that's what he says and he's reliable I'm told. Having PT on the elbow twice a week for 6 weeks then back to the ortho guy.
Let's hope we all get some relief from this awful stuff called RSD -
Bye for now,
Deb[/QUOTE]

Deb,

Sorry to take so long getting back to you. And you are more than welcome for the reply I sent you. We all need to stick together. Emotional support is key when you are battling this war. I do get sweat around my leg that has the rsd but I get more every where else. I'm always changing my shirts,and I constantly feel self conscious about if I smell or not. I hate it!!
You cleaning is not boring and I'm happy for you that you do things to feel productive. There are so many times that this rsd knocks you down that you don't feel like a productive member of society. I completely understand. I used to be a very active person, but now I'm just glad when I can help my husband around the house or make a meal. It's very hard being only 23 and knowing that this is how it is now. No more going to work,no more spending the day on the lake or camping,etc. I think being able to do the little things,even if it's just organizing your house helps with moods and that constant emotional battle on trying to feel like you are doing some good. I hope you get some control with the sweating. It can be hard. And I agree with you about who wants to take a whole bunch of showers. There are some days that there is nothing more that I would love then to go in the shower and feel clean but can't move,can't stand and definitely can't handle the water hitting my leg. Have a good weekend. Happy 4th! and try and have a pain free day :)
Deanne
[QUOTE=RoseinSanDiego;4011852]Hello Everyone -
I try to not complain, and I try very hard to be optimistic but I gotta talk to you. I'm am SOOOO TIRED of sweating! I'm very overweight (200 pounds) due to the lack of exercise (RSD is in both feet) and the RSD meds. Okay, so anyway -- It seems like all I do is sweat, sweat, sweat and I'm getting disgusted because it drips all the way down the middle of my back. I usually just change my top. I've got longish hair too, and it's wet at the back of my neck all the ou -- Gross!
Was wondering if any of you experience this --
Thanks very much!
Deb[/QUOTE]

Yes, I thought it was meds or something, but esp. in the morning , I eat warm/hot oatmeal and hot tea and it just gets it going terrible. Have to shuck off top and stand out in the cold air to calm it down. Mine is mostly around the head and torso, but even in bed I am chilled , put on covers only to start the oven going and have to throw them all off. It is the kind of heat waves from menopause. An internal heat. So uncomfortable and constant these days it seems. Is it a part of this syndrome?
Thanks, Sherrie in Nebraska
[QUOTE=harmony85;4015819]Deb,

Yes I know first hand what you mean. I hate it too. It can be very gross to have to continually change your shirt because sweat is dripping like you just ran a marathon. I have rsd/crps in my left leg and do get sweating. My doctor has told me that when your body is in extreme pain all the time that your sweat glands grow and you can make more so that your body can try and "sweat out" the pain. There is not much that can be done about it either. You can see a dermitologist and possibly get prescription deodorant to help. Loose clothing can help and also cotton or breathable fabrics can make a big difference. It's just one of the many things that go along with having rsd. I personally go through it and have talked with many people who have the same issue. I've heard of cool compresses helping some people depending on where the rsd is and if you are cold sensitive. If you can handle it just use a cool rag for around your neck. Don't forget to drink plenty of water,not just water but COLD water. The cold water helps to cool down the body from the inside out. Sorry for your issue but know that you are not alone.
Deanne[/QUOTE]

I think your doc is making things up.. the sweating I am told is a part of the sympathetic nervous system.. also blood pressure/heart rate and so forth and so it gets out of whack and creates this sweating syndrome as well. I did not have it for a long time. I am into this a little over two years and the sweating started slowly some months ago, now it is almost constant.. goes from chills to heat .. seldom a normal body temp it seems. I hate it also.
Warm foods for sure trigger it. Darn.. I am in Nebraska and this cold winter just calls out for hot oatmeal and soups, etc.
Glad to have found this site.. you all make me feel like I have found I am not alone in this nutty syndrome

Sherrie in Nebraska





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