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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board


Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index


Hello everyone, my name is Martha and I was diagnosed just two months ago wit RSD. I just will like to share my story and mabe get some advice.
I was in an accident back on Feb. 08 (not my fault) and have neck injury an right shoulder injury....I immediately started with PT and my neck started to get better ( have two buldging disks and a staigth neck) but my shoulder never did, I had my first shoulder surgery on 07/10/08, the surgeon cleaned up my bursa as it was very imflamed and i had bone spurs, after that my shoulder froze...I have had three more surgeries since to correct that as I developed a lot of scar tissue, I can barely move my arm, is completely stiff and no matter how many suregeries I have had it keeps scaring...I do PT now twice a week (have never stop PT since the accident), the pain is horrible it has got worst than better and I cant sleep at night I was working a full time and a week ago after 8 years of working full time for this company I sadly had to tell my boss I could not do it anymore and started working parttime, actually 25 hours to keep my benefits (insurance) two months ago my surgeon sent me to see a neurologist to see if there was some nerve damage that was not letting my shoulder heal correctly, she (neurologist) is also a pain managment doctor, so i went to see her and thank God she put me is a program of medicines that are working about 80% Lyrica, Oxycontin CR and oxycodone for the brakethrough pain, and now neurontin...they all seam to be working for me with no side effects, then she sent me to see an anesthesiologist to see if I had RSD as my pain is so horrible when im not on the meds that I can barely do anything but cry, so he saw me and determine I have RSD because of my sympthoms, horrible pain in my whole arm including my hand and the right side of my neck, my whole arm (hand, forearm, upper arm shoulder) is pale compare to my other arm, is very very white, numbness, tingling, burning that now is spreading to my upper back, very dry skin and weird looking, like broken and shiny and I have a weird looking sore in my under arm (armpit) that gets very red (like pure flesh and hurts so much) and itches a lot and it get better after acouple days but again it starts itching and burns and peels a lot, I have had three stellate ganglion blocks but they have barely help only like a day or so......I'm so sorry this is taking so long it is my first time in this board....anyways all my doctors say I have RSD but my PT girl says I dont because I do not have the sensitivity to the touch and the swelling.....its this the case? do I need to have sweling and sensitivity to touch to have RSD? I'm very confused now....please I will really appreciate some advice and help, i'm very sad and depressed because of this, my life has change so drastically, I'm affraid this is spreading as I said before I have very strong burning in my upper back...help please...can anyone help me! thank you so much for listening to me, Martha
[QUOTE=maluza;4044448]Hello everyone, my name is Martha and I was diagnosed just two months ago wit RSD. I just will like to share my story and mabe get some advice.
I was in an accident back on Feb. 08 (not my fault) and have neck injury an right shoulder injury....I immediately started with PT and my neck started to get better ( have two buldging disks and a staigth neck) but my shoulder never did, I had my first shoulder surgery on 07/10/08, the surgeon cleaned up my bursa as it was very imflamed and i had bone spurs, after that my shoulder froze...I have had three more surgeries since to correct that as I developed a lot of scar tissue, I can barely move my arm, is completely stiff and no matter how many suregeries I have had it keeps scaring...I do PT now twice a week (have never stop PT since the accident), the pain is horrible it has got worst than better and I cant sleep at night I was working a full time and a week ago after 8 years of working full time for this company I sadly had to tell my boss I could not do it anymore and started working parttime, actually 25 hours to keep my benefits (insurance) two months ago my surgeon sent me to see a neurologist to see if there was some nerve damage that was not letting my shoulder heal correctly, she (neurologist) is also a pain managment doctor, so i went to see her and thank God she put me is a program of medicines that are working about 80% Lyrica, Oxycontin CR and oxycodone for the brakethrough pain, and now neurontin...they all seam to be working for me with no side effects, then she sent me to see an anesthesiologist to see if I had RSD as my pain is so horrible when im not on the meds that I can barely do anything but cry, so he saw me and determine I have RSD because of my sympthoms, horrible pain in my whole arm including my hand and the right side of my neck, my whole arm (hand, forearm, upper arm shoulder) is pale compare to my other arm, is very very white, numbness, tingling, burning that now is spreading to my upper back, very dry skin and weird looking, like broken and shiny and I have a weird looking sore in my under arm (armpit) that gets very red (like pure flesh and hurts so much) and itches a lot and it get better after acouple days but again it starts itching and burns and peels a lot, I have had three stellate ganglion blocks but they have barely help only like a day or so......I'm so sorry this is taking so long it is my first time in this board....anyways all my doctors say I have RSD but my PT girl says I dont because I do not have the sensitivity to the touch and the swelling.....its this the case? do I need to have sweling and sensitivity to touch to have RSD? I'm very confused now....please I will really appreciate some advice and help, i'm very sad and depressed because of this, my life has change so drastically, I'm affraid this is spreading as I said before I have very strong burning in my upper back...help please...can anyone help me! thank you so much for listening to me, Martha[/QUOTE]

hi Martha, i also have rsd and cant walk following a fell at work on 8/8/10 i do have swelling on and off i do have the sensitivity to touch i am in pain all the time it feels like someone is shocking me and then stabbing pain , the n burning it all the time i am on dilaudid which is like morphine , anti drepressions , neurontin , but it doesnt seem to help i was hospitalized a few times b/c of the pain i have been to er for pains shots i just cant seem to get any relieve form the pain opps i forgot to add i also have a venous malformation in the same leg and foot , diane





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