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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board

Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index

Hello. I'm new here and I hope you don't mind me jumping right in but I thought I would share with you me experiences with both a spinal cord stimulator and ketamine infusions. In August 2007 I had a spinal cord stimulator placed while I was on short-term disability from work as a RN. It worked so well for me that I was able to return to work by November. I had weaned off of all pain medication except for an occassional pain pill after work if I had a really bad day and lifted a lot of patients. At the time my RSD was only in my right arm. By Feb 2008 I was no longer getting the same relief of pain and I met with my surgeon and the stim rep to make adjustments to the SCS. Unfortunately nothing we tried worked and the stimulator started mimicing my pain rather than helping it. My RSD also spread to my left arm and chest wall. I've heard both good and bad experiences from people about spinal cord stimulators. I still have mine in and try it about once a month to see if it will start working again but so far no luck. Now to the Ketamine infusions. I see a Dr. John Claude Krusz in Dallas, Tx. I have done three rounds of ketamine. The first was a three day infusion. It helped. The second was a five day course. I decreased my pain by 50%+ for about six weeks. It was so nice. I was also put on a compounded form of sustained release ketamine. The third ketamine infusion, which was just this past April, unfortunately only helped for about 24 hours. It is very expensive and most insurance companies do not cover it because it is considered "expiremental". Mine covered about 60% when all was said and done but we still ended up draining our savings account. There are alot of side effects with the ketamine. It makes you very spacey especially on the higher doses. I had episodes where I would black out so to speak--I wouldn't know where I was or what was happening, nothing made sense at all. It only lasts for 5-10 minutes but it can be very scary.
If you have any questions, I'd be glad to share my experience with you.


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