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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board


Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index


Hello Karen,

Im kind of new to here, also. I got RSD back in 2003..and was posting like a kid on ADD about what i was going thru. well 8 years later and alot has happened to me..medically. My new battle is staying off opiate therapy and looking forward to new scs at end of this month.

I am not a Doctor, so I cant tell you if you have RSD...but as you know by now...if you are questioning it and someone has muttered the words RSD/CRPS, chances are you have it...based on your symptoms..I dont need to be a Dr. to know I feel what you feel.

Mine started in my head/ face moved all the way down to both arms and hands..I have a perm cervical scs and get gettin new one in lumbar cuz it moved to other side but lower back and leg and foot.....I cant say for sure that treatment will be pleasant or satisfying....Just a word of advice...no matter how bad the pain gets try to stay off opiates....i dont blame docs or the world. Its just sometimes we have things to bear. and using an addictive drug does not help in the end..It will only cause more pain and agony.. Now, I am having issues with First SCS...had to turn it off...it was too high and need new programming....

One more thing in your long Journey of Hell....is dont stop posting here...it will help your sanity...as I know that I have missed...If you wanna see a lil bit of where I have been..you can look up Budko on these boards and I have posted alot about treatments and where I was coming from...If you want to ask specfic question..I am here for you. Do have a good support at home? You will need it...I am not trying to scare you....I just dont sucker punch people...I will tell you where I have been and you take what you want and leave the rest. Any logical human would think that way...

Hugs and Wishes,
Kim





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