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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board


Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index


Really hope your feeling better after your operation . I was awake through mine too and it was a nightmare and it did hurt like he'll during the placement of the wires . I saw the consultant today and he explained that RSD can effect the blood supply to the nerves and causes change of temperature and the clammy ness I am getting . He thinks it started after my first stimulator was removed . Well ripped out quickly after I got the infection that travelled down the wires.

They are going to start me on Amatryptaline to see if it calms things down also to take steroids when I get an episode.

I will look up that stuff you recommended . Also I read about epidermal growth factor that's used to heal diabetic ulcers used to heal these sores . Yuk all vile . As long as it does not all drop off lol, my luck one day I will wake up and it all will be on the floor next to my bed :)

Be well and let me know how you are feeling ! Which stimulator did you have this time? I've the medtronic sensor and so far so good





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