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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board


Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index


Re: RSD help
Apr 26, 2011
Dr. took me off Lyrica today(made me tired and short tempered) and switched me to nueroten(?sp.). supposed to start with 300mg, then gradually up to 900mg if needed. Ran across a post on withdrawl from this stuff and am worried about starting it. Figure I'm okay on lyrica as only on it a couple weeks. Anyone out there familiar with this stuff. Lyrica didn't seem to do anything but make me irritable. Would appreciate any information anyone has. Thanks.
Re: RSD help
Apr 26, 2011
I started Neurontin last week. I've been on it a week now and started with 300 mg at night. I was told if it doesn't help and I can manage adding a dose, then add the morning dose. I did that today and I still had the burning and I was so out of it all day. I slept all afternoon and was worthless all day long. Tomorrow I'm not taking the morning one. I see my dr. on Friday and I will tell him that it isn't worth the side effects. Now, one of the side effects is sleepiness but it kept me up all night. I was sleepy today when I took it, but I hadn't slept for 2 nights. It seems I"m up 2 nights and then the 3rd night I am so tired that I do sleep some and then I'm up 2 nights again.

Some people do well on it. My OS who put me on Lyrica first (I was allergic) told me that neurontin is less strong so you have to take it more, but because it is less strong, the side effects would be less. I have weird reactions to pain meds though. Oxycontin after surgery wires me up and I'm up and ready to tackle the day at 3am after no sleep. It never makes me tired. So, it could just be me. I was told it takes awhile, a few weeks, to get your body used to it.
Re: RSD help
Apr 26, 2011
Talked to a freind. Said she was given it for hip pain. Said it made her feel drunk like. Think I'll wait and see. Let me know what your dr. says. What I've read doesn't sound to good. May reach a point I don't care about effects. Last night was a night from H>>>> and still on lyrica, but I'm not big on drugs to begin with. I guess most of the time I don't know rather I'm coming or going. Pain so far has been ?do-able? but 24/7. Don't know if I can see myself a year or more from now, the same(fingers crossed) or worse.
Re: RSD help
Apr 27, 2011
KLana it took me about 3 weeks of taking 300 mgs 3xs a day before I really noticed anything and for the druken groggy side affects to subside. Neurotin doesnt work for everyone, but I would give it couple more weeks before you give up on it. I started with Lyrica and I could not tolerate the side affects nor did it offer any relief of my pain. Other people Lyrica works great for so basically its a crap shot lol. just give it a couple more weeks.
kelly





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