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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board


Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index


Hi I'm new to this forum. I've been reading many of the threads for about a week or so. Very hard to swallow & I truly feel terrible for all of you that suffer from this awful condition.

I have been told by 2 different Dr's that I have RSD, both just last week. I also have Tarsal Tunnel & Neuromas which is one reason why I think it took a few weeks for my podiatrist to consider RSD as they all have some similar symptoms. That is until my worsened.

I want to know if any of you had any success with supplements, B12 shots, Bowen Therapy, anti inflammatory diet, physical therapy. I'm going on 2 months of a foot injury that has not yet healed. I did get 3 cortisone shots in the right foot last Thursday and started walking without crutches and the walking boot after being fitted in Brooks at a local specialized store. I can do my daily household activities, take the toddler to preschool (1 block driving from my house) and chores. Today I cooked for the 1st time & did 1 1/2 hrs of physical therapy for the 2nd day in a row.

The PT & podiatrist say they have both dealt with RSD often and suggest I have mild RSD. Is there any such thing, or do they mean it's just the beginning? Or are they trying to come across calm so I don't panic? They both say the odds of remission are high if I keep a good attitude, do my physical therapy & learn calm down (I'm a very active/hyper gal). I'm working on quitting smoking and cut way down on my caffeine.

I'm on Neurotin, have been or almost 2 months, it's the only thing that seems to work. I was given vicodin for a few weeks but it was not working & all I would do is cry at night.

Also, so long as my foot is taped the pain is down, prior to the cortisone shots my pain level would double hours after the tape was removed.

Has anyone here had a mild case and that was it? It didn't spread or progress?

Thanks for all your feedback, thinking and praying for all of you





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