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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board


Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index




I have RSD in my right leg...It began after an injury sustained at work and a surgery that followed. It took approximately a year to be diagnosed with RSD and then close to 9 months to get treatment for it. After many blocks and a load of medications I finally decided to go with the spinal stimulator.

I had the stimulator put in last summer (2000). At first, it was a Godsend! Talk about relief!! For the first month, I was able to wean off most of my meds...was just down to Neurontin. By month two, physical therapy was going well and I thought this was going to be "the cure". At the end of the second month, my doctor made some adjustments on my stimulator and things just went downhill from there. I started getting severe backpain and the leg pain was back full force and then some. The stimulator just wasn't cutting it anymore. Since I had had an "old" electrode, they decided it would be best to do a revision. It just didn't work....it's been "revised" twice since. I have the most incredible back pain as a result and am looking forward to having it come out. I've been really disappointed because it worked so well at first.

I'm not writing this to scare anyone off of getting the stimulator. In fact, I'm still an avid proponent of it. It's possible that if the adjustments had not been made, the stimulator would have continued working as well as those first two months...but it's also possible that it was simply "rejected" by my body.

I will say this to anyone thinking of having a spinal stimulator put in: Give it a LOT of thought...the stimulator DEFINITELY has its advantages and if it works according to plan, it can be the difference between disability and living a functional life. Be very careful and aware of what your doctor is doing as far as adjustments...ask EVERYTHING and be armed with knowledge. Get opinions from other people that have had them...did it work? Did it offer relief? If so, how much relief? Would you do it again? Have you had any complications or side effects?

However, even after the complications, I would do it again, if only for those two months of relief. That alone can make it worth it.
I have one and had the opposite thing happened :confused: . Man I was totally disappointed. I had read on different web sites were this person or that got their life back. Well the surgery was alot more extensive than I was told about to begin with and that really made me mad :nono: . I still have pain, but there are still days that the little thing actually works :) . It's not dependable or reliable and I have learned that it does best if I cut it off every little bit and give it a rest for a day or 2. My RSD in Left foot x4 years now. and now SMP with R arm involvement as well. I also had a herniated L4-L5 and L5-S1 and it's really helped that. But If i can get 1 day of relief, it's worth it. Then there are days I know it's time to cut it off, cause it makes the pain worse?
I know there is no rhymn or reason here, but you know this whole mary-go-round has never had rhymn or reason!!!!!!!!
It's nice to meet you, and I am, In kindest regards,
deefer
[QUOTE=ivonly]I have RSD in my right leg...It began after an injury sustained at work and a surgery that followed. It took approximately a year to be diagnosed with RSD and then close to 9 months to get treatment for it. After many blocks and a load of medications I finally decided to go with the spinal stimulator.

I had the stimulator put in last summer (2000). At first, it was a Godsend! Talk about relief!! For the first month, I was able to wean off most of my meds...was just down to Neurontin. By month two, physical therapy was going well and I thought this was going to be "the cure". At the end of the second month, my doctor made some adjustments on my stimulator and things just went downhill from there. I started getting severe backpain and the leg pain was back full force and then some. The stimulator just wasn't cutting it anymore. Since I had had an "old" electrode, they decided it would be best to do a revision. It just didn't work....it's been "revised" twice since. I have the most incredible back pain as a result and am looking forward to having it come out. I've been really disappointed because it worked so well at first.

I'm not writing this to scare anyone off of getting the stimulator. In fact, I'm still an avid proponent of it. It's possible that if the adjustments had not been made, the stimulator would have continued working as well as those first two months...but it's also possible that it was simply "rejected" by my body.

I will say this to anyone thinking of having a spinal stimulator put in: Give it a LOT of thought...the stimulator DEFINITELY has its advantages and if it works according to plan, it can be the difference between disability and living a functional life. Be very careful and aware of what your doctor is doing as far as adjustments...ask EVERYTHING and be armed with knowledge. Get opinions from other people that have had them...did it work? Did it offer relief? If so, how much relief? Would you do it again? Have you had any complications or side effects?

However, even after the complications, I would do it again, if only for those two months of relief. That alone can make it worth it.[/QUOTE]





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