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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board


Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index


Pregnancy with RSD?
Mar 14, 2002
I am a 31 year old woman who has RSD as a result of a bunionectomy in my left foot in 1998. It has spread up my left leg, hip, spine, left arm...I am still undergoing nerve blocks,HBOT,medications etc. in an attempt to control this dibilitating syndrome. At the same time my husband and I are really wanting to start a family. I am hoping to hear from others who have RSD and who have had children. Their/your experiences throughout the pregnancy, pain level, anything and everything that you could share would be very helpful.
Best Regards~
Kim
:wave:
HI TWITCH.
I JUST READ YOUR NOTE ABOUT RSD AND WANTING TO BECOME PREGNANT.
I WAS DIAGNOSED WITH RSD 2 YEARS AGO, IN BOTH UPPER EXTREMETIES AND IT HAS SINCE SPREAD TO BOTH LOWER EXTREMITIES. WE WERE TRYING TO GET PREGNANT BEFORE I GOT INJURED AT WORK OVER 3 YEARS AGO. SINCE THE INJURY I HAD RESOLVED TO THE FACT THAT I WAS NOT GOING TO BE ABLE TO HAVE CHILDREN. WELL, I AM NOW IN MY 4TH MONTH. WE WERE NOT PLANNING AND IT HAS BEEN VERY DIFFICULT. I WAS STILL ON ALL MY MEDS. I HAVE BEEN SO ILL THAT I COULDNT EVEN KEEP ANY MEDS DOWN, SO NOW I AM TAKING NOTHING OTHER THAN TYLENOL. I HAVE LOST WEIGHT AND BEEN DEHYDRATED BUT IT IS FINALLY STARTING TO GET A LITTLE BETTER. OUR SCREENING AND U/S SO FAR ARE GOOD. I HAVE BEEN TRYING TO FIND INFO AND PEOPLE TO TALK TO IN MY SITUATION AND HAVE FOUND VERY LITTLE. IT IS INCREDIBLEY DIFFICULT AND PAINFUL (ALTHOUGH BEING PREGNANT IS SLIGHTLY THERAPUTIC AND CAN REDUCE THE SYMPTOMS OF RSD, .... UNTIL DELIVERY). IT IS SCARY AND A BLESSING AT THE SAME TIME. THIS IS MY STORY SO FAR. IF THERE IS ANYONE OUT THERE IN THE SAME SITUATION I WOULD LOVE TO TALK TO YOU, OR IF ANYONE HAS ALREADY GIVEN BIRTH. IT IS SCARY, NOT JUST GETTING THROUGH THE PAIN WITHOUT MEDS, OR THE FEAR OF BIRTH BUT OF HOW YOU WILL CARE FOR THE BABY AFTERWARDS. I WOULD LOVE TO HEAR FROM OTHER MOMS WITH RSD.
PAINFREE AND PEACEFUL WISHES
:angel:
Hi to all of you pregnant and wanting to give birth--or ready too! I pray for all of you wanting to or enduring such a hard task without meds. :angel: You gals, outta be congradulated on enduring such a task. It's too bad that there isn't a site out there just for you two! I guess you gotta keep strong and keep truckin' cause that's what we do after they are born and till they are adults, and still living at home. Stay strong--Aloha Skooze





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