It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board


Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index


RSD or not?
Jul 2, 2003
I've started this post because I feel like I'm kind of in the same boat as Alanmc56. That is, I'm not getting a definite answer from the doctors on my diagnosis.

As some of you may remember, I injured my toe 3 months ago. I apologize if I am repeating myself from a previous post but I'm still in pain and also still really confused. My symptoms at first were the following:

After 3 days of injuring my foot, I could not put any pressure on the ball of my foot. If I did, I would go through the roof with the worst electrical shock type of pain. My foot would swell up all the time and turn purple. After a month, I saw the doctor I work with (a pain management doctor) who knows RSD very well. Just by the look on his face, I knew what he was thinking but he told me I developed osteoporosis in my ankle and that I could have RSD or Morton's neuroma. I researched both and was horrified to find that I had almost all of the same symptoms as RSD (except hypersensitivity of the skin) and not Morton's neuroma. I was advised to exercise my foot every hour and to see a physical therapist and a podiatrist immediately.

I started seeing a podiatrist who thought it was a mild case of RSD, gave me a posterior tibial nerve block in my ankle and asked me to come back in a week. When I came back, I was able to walk on my foot without pain. She then decided that it wasn't RSD.

Two weeks later, I was just lying in bed when my ankle popped and I had excruciating pain. I decided not to go to the E.R. because I had a follow-up appointment with my podiatrist in 2 days. When I saw her, she indicated I had torn ligaments in my ankle. She put me in an air cast instead of a regular cast because she didn't want the nerve problems to come back in my foot.

Two weeks later, I now have shin splints too. The podiatrist gave me a removable "Low Profile walker" because of the "complex regional pain syndrome." I am really confused because she said previously that I didn't have RSD and now is she saying I do?

My current symptoms which are constant are: My entire leg hurts (like someone is stretching it in two directions) or another way to describe it is it feels like when you have a fever and your extremities ache. I have an annoying feeling in my foot like it is asleep, and it is tingling, hot (not to the touch) and stiff. Then, maybe 3 times a week, multiple times throughout the day, I will get terrible spasm-like pains in my ankle. They are so bad that I have to grab the crutches and lie down. I'm taking Indomethacin, an anti-inflammatory, for the pain flares which helps a little.

My questions are: 1) Could it be that I did have RSD but it is in remission? 2) Should I be concerned about my current symptoms; that is, do I have RSD and it is not in remission? 3) Should I ask the doctor for a bone scan (on the advice of the pain management doctor I work with)? He indicates that this is one way to tell if you have RSD or not; but, if it is in remission, what would show up on the scan? And what specifically are they looking for on a bone scan?

Thank you for your help, and I'm sorry this is so long.

Norine





All times are GMT -7. The time now is 09:57 AM.





© 2021 MH Sub I, LLC dba Internet Brands. All rights reserved.
Do not copy or redistribute in any form!