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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board


Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index


Re: New to website
Aug 12, 2003
Hi Soxy, Last year I could barely walk but now the Topamax really helps, it's just the burning and crushing that really gets me. I have had so many blocks and epidurals that I can't count them all! Also, I take Zanaflex in the evening and that really helps with the spasms throughout the day to the next evening.

I have Ketamine gel or cream, whatever, specially compounded, but rubbing that stuff on is a killer. Most of the time I don't even try. I have tried the lidoderm patches but I can't stand to put them on the place that hurt and the worst is taking them off!!! OUCH! What I don't understand is why a doctor would ask you to stick or rub something on yourself when you don't even want him to touch it???!!!?!?!? It's beyond me!

Well, gotta get on to the VooDoo MD or Pain MD to see what he wants to stick in me next or get denied breakthrough meds again. Maybe it's time to find a new Doc. This is just my 2nd one, is that too many?????

Take care and good luck with your block Soxy.

Tqueen






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