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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board


Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index


I'm trying to figure out how long I've had RSD. The injury that eventually resulted in RSD occurred in February 2002. They did testing for months and found all the ligament/structural damage, but didn't recognize RSD symptoms until November 2002. Doc finally suspected RSD in December 2002. Then in March 2003, they did a QSART ("sweat test") that confirmed the RSD. So does this mean I've had RSD since my injury, or it developed months after, or I "got" it when it was "suspected" or when it was officially diagnosed?
How do you guys determine how long you've had it?
I know its very common to have RSD for awhile before its diagnosed, but then how do you determine how long you've actually had it? (I've had "RSD pain/symptoms" since the day of my injury, but just didn't realize at the time that's what it was.
Well, for myself, I go by when my symptoms started. I started with swelling and discoloration and lots of pain, Feb 21st this year, 2 weeks after I was injured. Even though I had no clue what was wrong I knew something was! I was injured Feb. 5th.
The Ortho. I got sent to diagnosed me near the beginning of April, then took the dx back..2nd opinion I went to said I had RSD. Then to another 2nd opinion for worker's comp, they ordered it, and he said no, but I may have had it and getting better! LMAO Now to an IME (too dang far away) to another doctor! So, it's been just over 7 months now, no treatment, few pain med and lots of stress and aggravation! I've had an MRI, x-rays and bone scan....no confirmation other than physical symptoms I experience.
Sorry to run on there....

Karen





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