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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board


Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index


The good about the Topamax is you have no appetite and so you will probably lose weight. I stayed the same, but didn't have to try to not gain weight. I loved that part about it.

BUT, I took myself off of it about 10 days ago. It made me depressed, angry all the time, and I found out after going off of it that it was the thing that kept me from sleeping. I also started losing my hair, had cloudy urine, tingling in my feet that I don't need since that is one of the places my CRPS is in.

The worst part was though, that the breaking point was when I was at the dr. and then the pharmacy and at both places I lost my ability to put thoughts into words in a sentence. I literally couldn't get the words out of my mouth to say what I wanted to say. This was absolutely embarrassing at the pharmacy when I was picking up my Topamax and MS contin. I felt like a real druggy. Who can't talk like that? At that moment I decided I was done with the Topamax. I weaned off of it over a few days and I started to sleep better, my depression is better, my moods are better, my head is clearer.

The only thing that sucks is the pain is worse and I don't know what to do because I've already been on Lyrica (allergic) and Neurontin -(gained weight and couldn't stay awake).

I was on Topamax most of the fall and went off of it at Thanksgiving due to the mood changes it gave me. Then when my dr.s abandoned me for 6 weeks after my surgery, I started it again because I was in so much pain. I was on it about a month when I remembered why I went off of it before.

So, those are some things to look out for. How are you doing on it?





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