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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board


Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index


Hi there -- welcome! I'm curious as what type of surgery you had. I had back surgery and now my poor left foot is suffering. I've done some research and seen the progression of this disease, so I am aggressively seeking out any and every possible treatment.

I was diagnosed in mid-March, and I am scheduled for my second lumbar sympathetic block next week. I am also titrating up my neurontin, receiving acupuncture, and I have finally gotten a physical therapy appointment. I have been to pain management centers at two major universities and they both contend that physical therapy is the most important component. If you have located a physical therapist who can treat you and is familiar with CRPS, I would recommend continuing treatment with the hopes of driving this disease into remission.
[QUOTE=SweetPeainSF;4981356]Hi there -- welcome! I'm curious as what type of surgery you had. I had back surgery and now my poor left foot is suffering. I've done some research and seen the progression of this disease, so I am aggressively seeking out any and every possible treatment.

I was diagnosed in mid-March, and I am scheduled for my second lumbar sympathetic block next week. I am also titrating up my neurontin, receiving acupuncture, and I have finally gotten a physical therapy appointment. I have been to pain management centers at two major universities and they both contend that physical therapy is the most important component. If you have located a physical therapist who can treat you and is familiar with CRPS, I would recommend continuing treatment with the hopes of driving this disease into remission.[/QUOTE]



well i'm nineteen years old -- when i was about tenish, i got diagnosed with kohler's diesease which is basically you lose blood supply to your navicular bone -- located right next to your growth plate on the top of your foot. . the doctor i had did surgery and put two little screws in. literally.. 8 years later... i start having issues again -- and youre not suppose to? So i go to the doctor and he does an cat scan and finds out that underneath all my bones, theres another shattered bone and it's pushing through everything else. he was amazed i even felt it. he removed it but he tried to go though the first way he did with the first surgery and ended up having to cut randomly above my ankle.. he knew that i'd have some nerve damage but not to the extremes i have now.
I'm pretty much a rare case and it's annoying haha!

So now i have physical therapy and such for the nerve damage..

The 2nd shot? Do you have to get a series of shots? I forgot to ask my doctors when I saw them.
I think that I might get the nerve block mostly so I dont have to rely on the medicines they gave me that give me the reactions of cramping, depression, rashes, etc. it's terrible!





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