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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board


Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index


Hi there -- welcome! I'm curious as what type of surgery you had. I had back surgery and now my poor left foot is suffering. I've done some research and seen the progression of this disease, so I am aggressively seeking out any and every possible treatment.

I was diagnosed in mid-March, and I am scheduled for my second lumbar sympathetic block next week. I am also titrating up my neurontin, receiving acupuncture, and I have finally gotten a physical therapy appointment. I have been to pain management centers at two major universities and they both contend that physical therapy is the most important component. If you have located a physical therapist who can treat you and is familiar with CRPS, I would recommend continuing treatment with the hopes of driving this disease into remission.
[QUOTE=SweetPeainSF;4981356]Hi there -- welcome! I'm curious as what type of surgery you had. I had back surgery and now my poor left foot is suffering. I've done some research and seen the progression of this disease, so I am aggressively seeking out any and every possible treatment.

I was diagnosed in mid-March, and I am scheduled for my second lumbar sympathetic block next week. I am also titrating up my neurontin, receiving acupuncture, and I have finally gotten a physical therapy appointment. I have been to pain management centers at two major universities and they both contend that physical therapy is the most important component. If you have located a physical therapist who can treat you and is familiar with CRPS, I would recommend continuing treatment with the hopes of driving this disease into remission.[/QUOTE]



well i'm nineteen years old -- when i was about tenish, i got diagnosed with kohler's diesease which is basically you lose blood supply to your navicular bone -- located right next to your growth plate on the top of your foot. . the doctor i had did surgery and put two little screws in. literally.. 8 years later... i start having issues again -- and youre not suppose to? So i go to the doctor and he does an cat scan and finds out that underneath all my bones, theres another shattered bone and it's pushing through everything else. he was amazed i even felt it. he removed it but he tried to go though the first way he did with the first surgery and ended up having to cut randomly above my ankle.. he knew that i'd have some nerve damage but not to the extremes i have now.
I'm pretty much a rare case and it's annoying haha!

So now i have physical therapy and such for the nerve damage..

The 2nd shot? Do you have to get a series of shots? I forgot to ask my doctors when I saw them.
I think that I might get the nerve block mostly so I dont have to rely on the medicines they gave me that give me the reactions of cramping, depression, rashes, etc. it's terrible!
After re-reading your post, I now realize that your primary questions seem to be about the nerve block, so I can give you more information about mine. I don't think it will cause any problems for your foot recovery, but you should ask your doctor if this is a specific concern.

You are not allowed to eat/drink, like any surgery. I arrived about an hour and a half prior to the procedure, got hooked up to an IV with saline.

I was wheeled to the OR and rolled myself onto the bed. They put Versed into my IV-- it is supposed to have an amnestic effect, but not for me. I stared through a hole in the bed for the procedure. I was at a teaching hospital and the doctor was coached through the procedure. She numbed the skin surface with lidocaine, then inserted a needle into my back. I felt pressure and some pain as the needle was pushed into the front of the lumbar spine. They take X-rays as the needle is inserted and some force is required to bend the needle around the front of the spine.

The doctor had to start over, since the first attempt was not properly positioned. (That was when I asked for more drugs.) The second attempt seemed shorter, but perhaps just because my brain was more muddled.

Afterward, I climbed back onto the gurney and they wheeled me to recovery. The Verser made talking difficult. They put LCD-style sticky thermometers on my feet to make sure that the drug was working, and they monitored these in recovery. My mom drove me home, and I walked with her to the train station (about a mile) to locate my car so she could drive that home. Then I took a nap for a couple of hours.

I had a lumbar fusion in December, and my back has been much more sore since the nerve block. If you don't already have back issues, you probably won't have as much pain. I should have iced after the block.

The hope with the block is that the symptoms will be completely resolved with the first block, but the pain management folks indicated that they would do as many as six sympathetic blocks depending on how much relief I got. The first block gave me total relief for about three days. For the block next week, I am going to ask them if they will start with no IV drugs and see if I can tolerate the procedure.

So sorry about your foot! I realize that the PT is annoying, but totally necessary.

I posted a list of vitamins in another thread: fish oil, Vitamin C, acetyl L-carnitine and alpha lipoic acid. One gave me a headache (made the mistake of starting several at the same time). The doctors said the most important is 3-5 grams of Vitamin C per day. I figure it's cheap and can't be any worse than the other drugs I'm taking. It doesn't treat the disease's symptoms, but is hoped to help your body recover. Since you are having a tough time with the nerve meds, you could try Vitamin C.





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