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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board


Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index


Hi there -- welcome! I grew up in Alabama, traveled to Florence every other year for swimming. I share your frustration. I live near San Francisco and I am willing to travel for physical therapy. It took me almost three months to get an appt with a PT!

If you cannot find a specialist easily accessible, ask your primary care physician to coordinate with the specialist you have seen before. Perhaps the specialist could come up with a treatment plan or a list of medications for you to try with the primary. This would cut down on your travel and perhaps get you the care you have been lacking.

I was also recommended a specific list of vitamins which I figured could be no worse than the other meds: Vitamin C (3-5 grams daily), fish oil, acetyl l-carnitine, and alpha lipoic acid. Please be sure to discuss with your doctor before starting supplements, though.
[QUOTE=SweetPeainSF;4988368]Hi there -- welcome! I grew up in Alabama, traveled to Florence every other year for swimming. I share your frustration. I live near San Francisco and I am willing to travel for physical therapy. It took me almost three months to get an appt with a PT!

If you cannot find a specialist easily accessible, ask your primary care physician to coordinate with the specialist you have seen before. Perhaps the specialist could come up with a treatment plan or a list of medications for you to try with the primary. This would cut down on your travel and perhaps get you the care you have been lacking.

I was also recommended a specific list of vitamins which I figured could be no worse than the other meds: Vitamin C (3-5 grams daily), fish oil, acetyl l-carnitine, and alpha lipoic acid. Please be sure to discuss with your doctor before starting supplements, though.[/QUOTE]

Thanks for ur reply. I've explained to my GP that the pain meds aren't helping at all & I had already traveled over an hr away to a pain spec. that did the injections thru the front of neck which only made it worse. That Dr said there was nothing stronger than the pain meds that my GP was already giving me which is Lorcet 10. I also suffer with DDD & it helps some with the back pain but nothing touches the CRPS in my left arm,hand & left ear. I've pleaded with both GP & pain Dr to try me on something else or find a Dr that is knowledgable in CRPS that might be able to help me...no luck. They just shrug their shoulders, sent me on my way! It's getting too much to bear & I really don't know how much more I can stand :( the Medical profession in my area & ER's ask me what CRPS is...
Yes, SGB is nerve blocks. I had 7 of them through the front of my neck on the left side of my vocal box.They made it worse. I take MSM with vitamin C also magnesium, zinc, garlic oil, as well as many other suppliments & try & eat a diet with fresh fruits & vegs cokking in olive oil, ect. I'm not able to interpreter anymore nor am I able to work doing anything now. Since I'm in constant, uncontrollable pain I can't do much of anything. Im on a fixed income so bi therapy, acupuncture, homepathy, anything like that I can't afford to try. I take a lot of Epsom salt baths. Thanks for suggesting the Jello. I stopped using the ice packs anywhere cause I was told it would cause the CRPS to spread. Maybe God will send my body healing soon. Thanks & pray for u as well





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