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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board


Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index


[QUOTE=JohnathanM;5163895]Hi Jewlz sorry been awhile since a reply to this but the work comp judge forced work comp carrier to pay for physical therapy. it's not going well. I can't do anything. even the smallest movement hurts so bad and increases my pain. you mentioned your TENS unit that helps you so we tried it. I can't stand anything to touch my lower right leg/foot/ankle so the PT tried putting it above my knee on my right leg. It caused a little bit more tingling in my leg but not foot or ankle. I have been experiencing stabbing/burning pain episodes for about 6 or 7 months now and they were happening about 3 to 4 times a week. last anywhere from 2 to 5 minutes. well since we used the TENS unit and PT activity i'm having them 2 to 4 times a day and they're lasting from 3 to 10 minutes!!! I can't believe it. I was really hoping it would help but it's only made the pain worse. Any advice for me? How do you use your TENS unit and what amount do you put it on? Each dial on mine was set to 8.[/QUOTE]

I'm sorry it didn't help you Jonathan. Just proof again that works for one, doesn't always work for others! My unit has IFC, TENS, and NMES. I use the IFC setting. I started out at about an 8, now I am up to anywhere between 14 to 18! I am out of physical therapy now. The PT said he is afraid that he is making matters worse. I have gained ground in range of motion but I have lost strength. My PM doctor was gonna send me to aquatic therapy. She figured the water should be a help since it will be in a well heated pool and it would put less stress on my back and really help to strengthen those muscles. Well, I got the call today that work comp denied it. So....I called my lawyer and he is going to get ahold of them to see why they are denying treatment for me. We are also discussing total disability now. My nurse case manager from work comp already made the statement that "we both know that I'm not going to be able to work unless some divine miracle happens." Well, I'm still hoping and waiting for that divine miracle! In the mean time, I thank the Lord for the good days and pray for the grace to get through the bad days. Since the last time I talked to you, it has since gone into my left arm. Sorry, if I already told you this, I don't remember. Anyways, I go back to my doctor next week to discuss this with her as well as the last thing she prescribed. Which brings me to the next point. She is prescribing a compound cream. It has Gabapentin, Lidocain, Ketamine, and I forgot what else, to help with the burning pain. It costs just under six hundred dollars but work comp is going to pay for it. I will let you know how that one works for me. It is supposed to help with the burning and the skin sensitivity. The name of it is TPS (total pain solutions). This isn't anything you get from a local pharmacy so there should be no problems getting it no matter where you live. It's worth checking in to!!!
[QUOTE="jewlz67;5164207"]

I'm sorry it didn't help you Jonathan. Just proof again that works for one, doesn't always work for others! My unit has IFC, TENS, and NMES. I use the IFC setting. I started out at about an 8, now I am up to anywhere between 14 to 18! I am out of physical therapy now. The PT said he is afraid that he is making matters worse. I have gained ground in range of motion but I have lost strength. My PM doctor was gonna send me to aquatic therapy. She figured the water should be a help since it will be in a well heated pool and it would put less stress on my back and really help to strengthen those muscles. Well, I got the call today that work comp denied it. So....I called my lawyer and he is going to get ahold of them to see why they are denying treatment for me. We are also discussing total disability now. My nurse case manager from work comp already made the statement that "we both know that I'm not going to be able to work unless some divine miracle happens." Well, I'm still hoping and waiting for that divine miracle! In the mean time, I thank the Lord for the good days and pray for the grace to get through the bad days. Since the last time I talked to you, it has since gone into my left arm. Sorry, if I already told you this, I don't remember. Anyways, I go back to my doctor next week to discuss this with her as well as the last thing she prescribed. Which brings me to the next point. She is prescribing a compound cream. It has Gabapentin, Lidocain, Ketamine, and I forgot what else, to help with the burning pain. It costs just under six hundred dollars but work comp is going to pay for it. I will let you know how that one works for me. It is supposed to help with the burning and the skin sensitivity. The name of it is TPS (total pain solutions). This isn't anything you get from a local pharmacy so there should be no problems getting it no matter where you live. It's worth checking in to!!![/QUOTE]

I hope that compound cream works for you. It didnt help me at all. I was on it for almost 6 months. I hope the aqua therapy helps you. My PT & PM ordered that as well and WC denied mine too.





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