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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board


Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index


Hello Lilly and welcome to the board! I'm sorry to say but it sound very much like RSD! The Neurontin does help, at least for me it does. When I first started taking it, it made me tired and dizzy but as time had gone, I got used to it. Now I take 3200 mg a day. Let me tell you, if I miss a dose, I feel it!!!! The pain pills for me only takes an edge off of things but that's about it. I am on Percocet now but again, it doesn't really do anything for me. Unfortunately, there really are no tests to say you definitely have it or not but going by your symptoms, it sounds like everything that people who have it has! Mine is in my lower extremities and it is just now starting in my arm. I had a lumbar sympathetic nerve block which is like the block you asked about, only its in the low back where they do it. Anyways, for most people, it does help! One thing you will need to know, what works for one may not always work for the other. It's frustrating because the doctors cant say...ok, it you take this, you will feel better. Right now, I am waiting for this compound cream to come in for me. It's a combination of Neurontin, Ketomine, Lidocain, and two other things but I cant remember. It will be putting it on topically as well as taking the meds as well. I am really hoping that it will help with the burning. That is something you can check into with your doctor. It isn't anything that you can get from the pharmacy, there is a company that makes it and they mail it to you. They called me today to let me know that it is being mailed out today and I should have it in the next few days.
I hope, if you have the block, that it brings you relief!!! If I were in your shoes, I would try the block. My first block gave me 2 months of relief!!! Keep us posted on how you are doing!
Julie





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