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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board

Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index

Hi onward2answers!

I'm so sorry you are dealing with this horrible disease!! :( These discussion boards are a wonderful support, though - I hope you like it here. They're also a great place to find out information - check out the various threads on treatments.

My daughter was also looking at a SCS after going through 3 spinal blocks and 5 Bier blocks, so I totally understand how you're feeling about putting something on your spine!! However, before we did the SCS, we found an experimental treatment called Calmare and she reacted very well to it and is now in remission. I know of another mom whose daughter (it seems to be hitting young women more) went into remission with H-Bot treatments.

Best of luck finding a treatment that works for you!!! Take a look around here - there's a lot of good info on various options.

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