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Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board


Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index


What are your experiences with physical therapy for Rsd? My doc just had me start doing 2x/week for 6 weeks. So far, I've only gone once and am very sore from basically just minimal massage and few measurement testings usually done at initial visit.

My pain doc started me on a low dose of Lyrica prob a month ago. He.also gave me corisone.injection at same appt. Feel better than i have in four years so not sure if its Lyrica or injection.

Now after one day of therapy, i hurt again and am scared to continue therapy.

Has anyone tried Lyrica?

How about experiences/opinions about physical therapy?
I onward2answers, I have done both, physical therapy and Lyrica. The Lyrica didn't help me but everyone is different. Gabapentin is the drug that works for my nerve pain. The physical therapy, although it is painful, will help you with your mobility because the last thing you want to do is lose your range of motion!!! One thing about this disease, if you don't keep moving, your joints will freeze up on you! Make sure that they don't use ice when you are through with therapy. A lot of physical therapists, including mine, don't realize that ice can make RSD worse! They will probably start doing things for desensitation. I had to put my foot in one of those disposable containers that you use for cooking a turkey, filled with rice, and move my foot around in it and use a paper cup to slowly pour the rice over my leg, ankle, and foot to help it. It did help somewhat on the desensitation but it was very hard to do in the beginning! I hope it helps you. We need to just keep pushing through and trying different things until we find something that works! Just remember, what works for one may not work for another so don't just go by what we say on here.
Like Jewlz said, its different for everyone. PT was much too extreme for my son, so we took him out of treatment and did it ourselves, in conjunction with an osteopath. But similar to what Jewlz said, we kept the emphasis on trying to keep things moving, but very very gently (warming, then warm oil massage, then mentally imagining movements until after months they started to happen). We did not push or pull,except during very gentle massage. It was totally through voluntary muscle movement. It took months of at least daily warming, massage and movement. We were very careful to watch out for any areas that started to show peculiar movemnt and worked on them as well.
[QUOTE="onward2answers;5220786"]What are your experiences with physical therapy for Rsd? My doc just had me start doing 2x/week for 6 weeks. So far, I've only gone once and am very sore from basically just minimal massage and few measurement testings usually done at initial visit.

My pain doc started me on a low dose of Lyrica prob a month ago. He.also gave me corisone.injection at same appt. Feel better than i have in four years so not sure if its Lyrica or injection.

Now after one day of therapy, i hurt again and am scared to continue therapy.

Has anyone tried Lyrica?

How about experiences/opinions about physical therapy?[/QUOTE]

Hi onward2answers like everyone else stated its different for everyone. With me PT made my "episodes" of severe pain flare up more. It went from 2 to 4 times a week to multiple times a day. I stopped after 6 weeks. I took it as long as I could. I've never been on Lyrica but have been on Gabbapentin for a little more than a tear now & while it doesn't help the pain much the Dr & I did find it slows the progression on the affected limb & from moving to my other limbs. I hope this helps & wish you the best





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