It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Reflex Sympathetic Dystrophy (RSD) (CRPS) Message Board


Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index


Hi Sue,
Your doing all the right things. Some Docs are real downers when it comes to RSD. The Doc that diagnosed me was a wonderful diagnostician but once the diagnosis was made all he could offer was " your not going back to work…..ever and there is no cure and it's rare with little info" Part of this was true. As long as I was on pain meds…..no work. Couldn't come off them without screaming. I accepted that and the blocks……..but started my own research. Right out of the starting gate I hit the Medical Board on Prodigy! There was a whole group…..called "RSD & Friends". (Prodigy went the way of progress) Friends they were,one of the members Fedex'd me a 4" thick envelope with info on RSD. More than that I found hope. I also found a wonderful real time support group.

I could not tolerate the Neurontin. Thankfully I tolerate Lyrica. In relatively low doses. I take 75 mg 2x day. I add one more on the bad days. I also use a lot of Motrin. I've opted not to use the opioids due to depression occasional getting a hold on me. I also take Baclofen for the muscle spasms.
Enough of my tale.
Keep coming back!
Hugs
Judie
Hi Judie,
Do you mind if I ask if the Lyrica has made you gain weight? Also wondered if you took biphosphonates during your first six months of diagnosis of having this. I am at month 5 now and wondered if anyone has done this and if it was helpful in reducing bone pain. THanks again.
Sue
Hi Judie,
Do you mind if I ask if the Lyrica has made you gain weight? Also wondered if you took biphosphonates or calcitonin during your first six months of diagnosis of having this. I am at month 5 now and wondered if anyone has done this and if it was helpful in reducing bone pain. THanks again.
Sue
[QUOTE=Sasu11;5292784]Hi Judie,
Do you mind if I ask if the Lyrica has made you gain weight? Also wondered if you took biphosphonates during your first six months of diagnosis of having this. I am at month 5 now and wondered if anyone has done this and if it was helpful in reducing bone pain. THanks again.
Sue[/QUOTE]

hi Sue, about 3 years ago after my first 2 ankle surgeries they tried Lyrica on me after ankle injections didn't work. I was on it for a year and a half and it didn't ease the pain much and I did gain weight. No matter how little of my favorite foods or how many salads I ate, I couldn't control the weight gain. Now 2 years later and just being diagnosed with CRPS type 2 I have been prescribed Gabapentin until my sympathetic nerve block next week. My feet and toes on both feet were on fire. I've been on the Gabapentin for just a week and I'm not sure it's helping at all. Thank goodness I have a really good neurologist that really seems to care that I'm in so much pain. He said if within a week I'm not feeling any relief he'll either try something else or combine it with another drug. I hate taking prescriptions but now I need relief. I have a feeling I will start gaining weight again especially since I'm less mobile but I don't care. I hope the Lyrica brings you some comfort. It seems like what works for some may not work for others. We just have to keep trying. Donna





All times are GMT -7. The time now is 08:37 PM.





© 2020 MH Sub I, LLC dba Internet Brands. All rights reserved.
Do not copy or redistribute in any form!