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Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index
Pages: 1Showing 1 - 18 of 18 for children with rnd. (0.002 seconds)

... RSD really bites. I'm 16 and I was diagnosed with RND 2 years ago. I had an asthma attack and then bam I had RND. The doctor I started out with had no flippin clue what he was doing. He gave me the at home program for RND patients and sent me on my way. ... (10 replies)
... Sealover, No idea why it relapsed. I was reading some recent writings by the doctor who originally diagnosed my RSD(RND) at 15. Dr. David Sherry. He said the studies have shown that 92% of children with RND who go through with (his) in-patient physical therapy treatment don't relapse within 5 years. Which was true for me, but then I relapsed within 7! Darnit! :) He needs... (8 replies)
... RSD and RND are exactly the same thing. Anybody who says otherwise is either misinformed or is adhering to to an idea that has no scientific validity. RND is a term commonly used by a certain set of pediatric doctors who believe in a certain set of practices to treat whatever you want to call this stupid disease. ... (7 replies)

... If it's not RSD, I certainly hope they figure out what's wrong. And I hope it's something easily fixable too! I've known a few people who were misdiagnosed with RSD. It happens, because sometimes other nerve problems can mimic the symptoms. ... (7 replies)
... Sorry to hear of your RND diagnosis, but glad you're being proactive about attacking it! ... (19 replies)
... skin issues, but I do have burning, stabing pains, muscle cramps, swelling and all of that lovely stuff. The docs have questioned my rsd also, but can't come up with anything else. ... (7 replies)
... vascular nerves that control blood flow. Decreased blood flow causes lack of oxygen and build up of lactic acid which causes pain. This source says that RSD is RND with autonomic changes, and that fibromyalgia is also a form of RND. ... (8 replies)
... n intensive exercise program. It didn't work. We are now seeing a pain doctor at Children's. She wants to do a Litacane Infusion on me. Has anyone tried this with RSD? ... (5 replies)
... hat you have to endure the pain you're experiencing and I appreciate the loneliness of your struggle. Our son is about to turn 19 and first began his experience with RSD at age 14. Unlike many adult RSD patients, he suffered no specific traumatic injury that triggered the pain. ... (19 replies)
... So now I need to go to ANOTHER doctor in Boston that deals with just nerve pain, I told him that I do not have sensitivity to touch. Just the burning stabbing pain inside the knee. ... (7 replies)
... I was diganosed with RSD also, I did have the symtoms but at differant stages of it... In the beginning I had alot more of the swelling, I don't have that all much anymore.. ... (7 replies)
... worded post. It's nice to be agreed with instead! ... (7 replies)
... RSD. Have any of you found that there was some kind of emotional issues involved with your condition too? ... (10 replies)
... I started a thread that said I have RSD that has also turned into chronic pain syndrome there's nothing to be confused about , a member yesterday corrected me telling me not to refer to my illness as RSD but to call it CRPS that's it I responded with I can call it RSD if I want and that CRPS is the new name but there the same you can see his espouse on this thread (33 replies)
... some drs believe it has 2 stages while others 5, but our symptoms never follow what the drs use to categorizes us. It is hard to have this beast, and deal with with the ridicule and arrogance of others, we need not have it from our dr,s.. ... (33 replies)
... My name is Caryn, I'm 18 years old and was diagnosed with reflex neurovascular dystrophy about two years ago. ... (10 replies)
... uch.I did have a difficult time and still do wearing normal shoes and sneakers. Right now they are working on desensatizing my feet so that I can tolerate shoes. RND is mostly found in children too. Swelling on the joints and limbs is not obvious on the outside and sometimes never shows up in Xrays. ... (9 replies)
... Hi, *I'm not a mom.. I'm a 16 year old RND/RSD patient. But I thought I'd let you know that I just started at Children's Hospital in Seattle. Its a program of physical therapy and counseling. They are telling me that 80% leave the program pain free after 3 weeks! I really recommend counseling even if your child doesn't do the phycial therapy stuff because its helped me so... (1 replies)

Associated Tags: cps, flareups. fear, pain, rsd

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