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Message Board


Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index
Pages: 1 2 3 4 5 Showing 1 - 20 of 97 for coping with rsd. (0.007 seconds)


... Your post really moved me and I thought I would respond. I have had RSD for 5 years now and it has spread to all limbs. I have insurance and I still live in pain so I am extremely impressed with your ability to put up with the pain. ... (8 replies)
Coping with RSD
Oct 18, 2012
... Hello, I am new here but I am looking to connect with others suffering with RSD. A few years ago I had an accident that severely injured my right ankle and low spine. Shortly thereafter I developed RSD in my right foot and lower leg. ... (2 replies)
... Thank God you have a way to earn money. I wish there were something I could do from home to earn more as the SS check and with insurance is not enough. I was forced into a individual policy after my cobra benefits ran out and it's quite expensive. But I am tied to it at the moment. ... (8 replies)

... sh I knew about a place like this when I first discovered I had rsd. I am thrilled you were able to get help from ss. I think they should cover people who are dx with rsd. I understand by having it in all limbs can be a horrible disabiliy. ... (8 replies)
... Get someone to represent you and they take care of everything. Don't give up, you need the medicare, like I said in my post just now, all you have to do is hire someone and go to the hearing, the rest they take care of for you. Oh and fill out the forms. Also, if more of us keep truckin and fight, then SS will see that its a disease they must approve on. If you have any... (8 replies)
... Most people out there seem to have coverage and can afford continued care. I don't have that option. Up to this point I haven't met anyone else who has struggled with rsd. There is no one who really understands or is there to help me. I have to take care of myself. I can't let this thing get to me. ... (8 replies)
Coping With RSD
Mar 25, 2005
... o since each of you is focusing on the blessings and not the setbacks, can you send some of your joy and spring attitudes my way. I'm having a really tough time coping with my situation right now and it's driving me deeper and deeper into depression. ... (20 replies)
Coping With RSD
Mar 26, 2005
... The Good, the Bad and the Ugly would be an excellent title for anyone with RSD. Many great things can happen if you would just allow them to. ... (20 replies)
Coping With RSD
Mar 18, 2005
... g a hard time trying to understand what is happening to you, and some may even turn away from you because you are overwhelmed and depressed. But we will carry on with our heads held high and not listen to anything negative because we know there are those with problems far worse than ours. ... (20 replies)
... I am so glad I found this site and hearing from other rsd suffers I do not feel alone.Now I have rsd in my hands and some days I just wish for a minute to be out of pain. ... (30 replies)
Coping with RSD
Oct 18, 2012
... Im also new so welcome! Yes when i was from the ages 3 to 17 i only had rsd in my legs and it has spread into my shoulders hands and arms since then im now 28. From what ive read it can spread anywhere even your organs! Ugh such a drag. ... (2 replies)
... I have RSD in my left hand, shoulder and my neck. I was diagnosed after my shoulder strain did not heal. The ortho dr sent me to an anesthesiologt. ... (4 replies)
Coping With RSD
Mar 25, 2005
... As upbeat as I am at times, I have my serious down times, too. That's part of the RSD, and it doesn't seem to be within my control. Sometimes I just have to roll with the punches and hope that I'll be back on my feet soon. ... (20 replies)
... A brief introduction. I tangled with an 18 wheeler 15 months ago. My knee and foot were both crushed and I have nerve damage from the knee down. ... (4 replies)
Coping with RSD
Oct 18, 2011
... I have RSD on the entire left side of my body from toes to shoulder. At one point, after the sympathetic nerve blocks were failing, I had epidural blocks with intrathecal baclofen. In the event you don't know about baclofen it is for spasms. I also had a plain epidural block. Both worked wonders for me. ... (7 replies)
... Well, how you deal with it is different for us all. The one "common" thing I've found is we all go through a grieving phase. ... (30 replies)
... I would love to share with both you and your daughter... and tell her from me "if you dont laugh about this hell you are only going to cry". ... (30 replies)
Coping With RSD
Mar 25, 2005
... Well this board is filled with positive attitudes! ... (20 replies)
Coping With RSD
Mar 20, 2005
... outing for spring chinook salmon today.. Wasn't a very good day to get out, but was nice to be outside for a change... Spending so much time inside dosen't help with the RSD pain or depression any.. ... (20 replies)
Coping With RSD
Mar 19, 2005
... I think the RSD also puts us on some sort of rollercoaster, because I have days that i'm feeling good enough to do something and days where I don't even get out of bed. ... (20 replies)




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