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Message Board

Reflex Sympathetic Dystrophy (RSD) (CRPS) Board Index
Pages: 1 2 Showing 1 - 20 of 35 for living a full life with rsd. (0.026 seconds)

... I'm new to this board but have been reading a lot the past week or so. ... (9 replies)
... all make the difference in our dealing with it. If you are in a wc case it could drag on for ever, and you'll get frustrated with their denials. I've tried about every treatment out there except for a SCS or a morphine pump. ... (6 replies)
... Hello I was diagnosed with generalized epilepsy in 2011 and diagnosed with rsd in 2012. ... (0 replies)

... Hey guys I am new here, and thankful I have found this forum because I have been needing so much support as I fight through this. I have been dealing with RSD for almost 3 years now and it has been absolutely miserable and I would give anything to have my life back. ... (3 replies)
... I was diagnosed with RSD when I was 12 years old. I lived with it for almost 4 years and was bedridden with it. The RSD spread from my right arm to eventually full body. I was misdiagnosed several times. I was diagnosed with pulled muscles, sprained wrist, arthritis, broken bone, and finally just plain old crazy. ... (9 replies)
... Wow, you are so brave.! I am afraid I have lost my courage. I cannot get a doctor in charge of this, they just don't know much about it, and tell me , it will just go away on it's own, not , or get some physical therapy. ... (14 replies)
... god,unfortunetly you sound soo much like me. i have had to have 16 MRIs just since 01. mostly c spine and knee,but the brain is in there along with the right shoulder which i just had my last surgery on. you know,i too have delayed pain. mine is just insane. ... (20 replies)
... My thoughts are with you, and like Karen says, you are not alone... ... (14 replies)
... Man I was totally disappointed. I had read on different web sites were this person or that got their life back. ... (5 replies)
Embarrassed of RSD
Nov 26, 2007
... Sounds like you're feeling quite overwhelmed. If you'd stop for a minute, quiet your mind, things would be a bit clearer. You're thinking with too many emotions right now. I know it may be hard to do, but it's worth it. Writing is always a good way to get things out and see more clearly too. ... (14 replies)
... For those of us out there that only have our insurance to pay for our expenses and not being able to pay for the copay hardly the expermental drugs generally are not available to us. I have tried the HBOT though My husband did everything he could to get me the treatment and I've had this disease by then for 6 years and it didn't do anything for me so it is not the end all... (9 replies)
... can be in full remission with no pain and no side effects. Having HBOT is expencive but it's no more expencive than searching out doctors and experementing with treatments that do not work but only allow a temporary fix. It's proven that the longer you are in remission the less the chances are of having it come back. ... (9 replies)
... Just read your reply...Well, living through it is a different experience every day. Sometimes when i try to post a message, I just don't even know where to start. I work full time. ... (8 replies)
... I have RSD in my right leg...It began after an injury sustained at work and a surgery that followed. It took approximately a year to be diagnosed with RSD and then close to 9 months to get treatment for it. After many blocks and a load of medications I finally decided to go with the spinal stimulator. ... (5 replies)
... Yep,stages just like you grieve when a loved one dies. They're pretty much the same. The difference being whether you wallow in it or fight back. ... (38 replies)
... I'm curious to why you would need to have treatments done by a dr. or a DO? ... (42 replies)
... your mind without humor! Unfortunately in my case though I've always had humor, my dang mind wanders off and gets lost quite often and I always have the devil of a time trying to find it and get it back!! LOLOL By the way, if you see it wandering around please return it. It's been awol for a few weeks now. ... (20 replies)
... Hi. I'm not an expert either, but I've had to live with RSD for almost 8 years now. ... (7 replies)
... I lost everything because of career, my fiancee, my life savings, my dreams. And NOBODY will do anything about it. My RSD was caused by bad foot surgery. It spread and is now full body. ... (22 replies)
... ree for years, the answer would be yes, they are in remission. When they pain comes back, you are no longer in remission and would be classified as having active rsd again. If you manage to beat it back and get pain free again, then you would be labeled in remission again. ... (12 replies)

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