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Spinal Cord Disorders Message Board


Spinal Cord Disorders Board Index


Re: Too Soon ?
Dec 1, 2003
Lexie -

*You* will know when it's time for surgery. I see you were taking steroids and they helped. What happened when you finished the steroids?

What happens if you take nothing for pain?

How has this affected your life? Do you NOT do things because of your pain?

Have you lost strength in your extremeties? If you have, you need to really observe yourself ... that can change to worse quickly.

You are already on short-term disability - that says a lot, if you ask me!

I have had two surgeries, 6 years apart - both times I just wanted someone to take me out of my misery - there was no getting comfortable, the pain was always there even with pain meds which numbed it a bit, but not completely.

You have quite a bit going on with your neck. If you can, maybe you should get a second opinion, just so you won't second guess your decision to have surgery. Go to a Neurosurgeon and see if he/she agrees with the Ortho. The myelogram will be a great thing to have on hand for the neurosurgeon to look at, along with any MRI films. Take them with you to the appointment. Good ones are hard to get into! Also, I understand your visiting your gp, but please don't listen to him about your spine. You need to go to a specialist.

I am sorry this has happened to you. People always ask me if I have been in a car accident (the brace is a dead giveaway). I tell them no, but I do wish that I had a fantastic story to tell. I, too, woke up one morning with each of my disks that had to be operated on. I have other problems in my neck, too, but they are not symptomatic ... not bothering me. My NS said some people just herniate disks, and I must be one of them. Sounds like you are, too!

Pay attention to your spinal cord! I believe it was Nero that said she was paralyzed for a short time because of her spinal cord involvement.

This is serious stuff, Lexie. I understand why you are reluctant to hop into surgery, but if you arm yourself with information and 2-3 respected opinions, you will feel a whole lot better.
Re: Too Soon ?
Dec 2, 2003
No, actually the steroids didn't do anything. I didn't start to notice a change in my pain until I started PT. But I had also had an increase in my pain medicine. I haven't tried going without the pain medicine because the pain took me to mental anguish. I would just lay on the couch a cry like a baby. I don't know that I can handle that.

My life pretty much consists of just laying on the couch most of the day. I never leave the house except to go to the Doctor, my parents, or the grocery store with my fiance'. I don't drive anymore because I'm on the pain medicine. I'm still out on STD which will turn into LTD if I go thru with the surgery.

I don't think I have lost much strength in my right arm. Only when it is pins and needles. The worst is the pain that comes from the right side of my neck and up the back of my head behind my ear....HAS ANYBODY ELSE HAD THIS TYPE OF PAIN? I asked my ortho if it was coming from the small rupture (C5-6) and he said he couldn't be 100% sure.

I have been told by a Chiro and my Primary Doctor NOT to have the surgery, that it will heal on its own in time. That keeps pounding in my brain and then I think I made the wrong decision agreeing to the surgery. I just don't want to make a mistake. A lot of the boards I've read people have gone many years before deciding on surgery and I've only been going thru this for a few months.

I have a Mylegram in the morning. Which I'm also nervous about. I think that will help me. The doctor will be able to see better how my nerves and cord are being affected.

I just want to say I appreciate reading about each of your experiences....I think about and pray for each of you throughout my day. We don't know each other but getting advice, & encouragement really helps me.

** anybody with the pain in the head behind the ear ? What did your Doc say about that ?




[QUOTE=DonnaKay]Lexie -

*You* will know when it's time for surgery. I see you were taking steroids and they helped. What happened when you finished the steroids?

What happens if you take nothing for pain?

How has this affected your life? Do you NOT do things because of your pain?

Have you lost strength in your extremeties? If you have, you need to really observe yourself ... that can change to worse quickly.

You are already on short-term disability - that says a lot, if you ask me!

I have had two surgeries, 6 years apart - both times I just wanted someone to take me out of my misery - there was no getting comfortable, the pain was always there even with pain meds which numbed it a bit, but not completely.

You have quite a bit going on with your neck. If you can, maybe you should get a second opinion, just so you won't second guess your decision to have surgery. Go to a Neurosurgeon and see if he/she agrees with the Ortho. The myelogram will be a great thing to have on hand for the neurosurgeon to look at, along with any MRI films. Take them with you to the appointment. Good ones are hard to get into! Also, I understand your visiting your gp, but please don't listen to him about your spine. You need to go to a specialist.

I am sorry this has happened to you. People always ask me if I have been in a car accident (the brace is a dead giveaway). I tell them no, but I do wish that I had a fantastic story to tell. I, too, woke up one morning with each of my disks that had to be operated on. I have other problems in my neck, too, but they are not symptomatic ... not bothering me. My NS said some people just herniate disks, and I must be one of them. Sounds like you are, too!

Pay attention to your spinal cord! I believe it was Nero that said she was paralyzed for a short time because of her spinal cord involvement.

This is serious stuff, Lexie. I understand why you are reluctant to hop into surgery, but if you arm yourself with information and 2-3 respected opinions, you will feel a whole lot better.[/QUOTE]





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