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Spinal Cord Disorders Message Board


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[QUOTE=JodieAnn]:confused: I had a visit with my Neurosurgeon today, and was scheduled to have surgery on May 13th (in two months). I am petrified!!!!! He says since it is a rare surgery (because of having to work on FOUR vertabrates, vs two) Iwill be under 6 to 12 hours. Aplate will be put in my neck to hold the Cavader bone plugs in place, and this will cause limited movement in my neck. I caught the end of a comercial on TV about a new medication that was out, and it is suppose to re-grow disk between the vertabrates. Does anyone know what drug that is? Also, has anyone had this surgery before? Any advice? Should I go throught with this surgery? I am 50 years old, if that helps any.
Thanks,
JodieAnn[/QUOTE]

JodieAnn,
First off dont get offended but a four level is NOT rare. I have a 3 level done at 2 different times and will most likely be looking at another level in the future years as my c3-4 has developmental stenosis. The surgery time sounds right as my revision took 5 hours (3 levels). The medication you are talking about I have never heard of but would love any info you find on it.
No one can tell you if you should go through with this surgery as you have to know you pain limitations. Can you function during the day?? Have you missed work due to pain??? How bad is your pain???? And of couse the million dollar question..... If you dont have it will you get permanent nerve damage??? I got 6 opinions from neurosurgeons and othropedic surgeons. I didnt stop until I felt 100% completely satsified with the prognosis. I suggest you do the same if possible. Are you taking any pain meds???
I wish you luck as I know this can be a very hard and trying time for you. Of course we are all different when it comes to recovery etc... but all of my surgeries ( except for 1) I did fairly well. 4-6 weeks.
Any questions you have feel free to ask.


Lori

LAMI L4-5 2001
ACDF C5-6-7 2002 OWN BONE
POST. LAMI-FORAMINOTOMY C6-7 2003
ACDF C4-5 WITH REVISION ACDF C5-6-7 2/25/2004
STAPH INFECTION 7/4- 7/9/2003

FUTURE:
ADR OR FUSION AT L3-S1
Welcome to the board! You have come to the right place for advice - I know the people here were a tremendous help to me.

Only you can decide if surgery is the right option for you. If you have any doubts, don't hesitate to get a second ns opinion.

I have had ACDF of C5-C6 with plating and overall have been pleased with my result. I thought I had a pretty high pain threshold before this all started but 32 hours of active labor without meds was nothing compared to this nerve pain. I questioned the decision to have surgery but in the end, decided that for the sake of my family I really needed to do it. While I could survive with the pain, I wasn't really functioning and the pain was making me really irritable and I was snapping at my kids. They really needed their mommy back. It has been a slow recovery, but the key is I am recovering. I am now 6 weeks post op and off all meds except for occasional Tylenol. I do have some pain (especially after PT) but nothing compared to the presurgical pain. I am pretty much back to a normal life and it's great to enjoy my family again.

The recovery and results from this surgery really seem to vary tremendously, which makes it difficult to make the decision to go ahead with it. It really is a quality of life issue. Keep learning as much as you can about it and if you have any other questions, this is the place to ask.

Best wishes.
[QUOTE=CTmom]Welcome to the board! You have come to the right place for advice - I know the people here were a tremendous help to me.

Only you can decide if surgery is the right option for you. If you have any doubts, don't hesitate to get a second ns opinion.

I have had ACDF of C5-C6 with plating and overall have been pleased with my result. I thought I had a pretty high pain threshold before this all started but 32 hours of active labor without meds was nothing compared to this nerve pain. I questioned the decision to have surgery but in the end, decided that for the sake of my family I really needed to do it. While I could survive with the pain, I wasn't really functioning and the pain was making me really irritable and I was snapping at my kids. They really needed their mommy back. It has been a slow recovery, but the key is I am recovering. I am now 6 weeks post op and off all meds except for occasional Tylenol. I do have some pain (especially after PT) but nothing compared to the presurgical pain. I am pretty much back to a normal life and it's great to enjoy my family again.

The recovery and results from this surgery really seem to vary tremendously, which makes it difficult to make the decision to go ahead with it. It really is a quality of life issue. Keep learning as much as you can about it and if you have any other questions, this is the place to ask.

Best wishes.[/QUOTE]

CT MOM...THANKS FOR YOUR REPLY...
:D NervousMommy
[QUOTE=CTmom]Welcome to the board! You have come to the right place for advice - I know the people here were a tremendous help to me.

Only you can decide if surgery is the right option for you. If you have any doubts, don't hesitate to get a second ns opinion.

I have had ACDF of C5-C6 with plating and overall have been pleased with my result. I thought I had a pretty high pain threshold before this all started but 32 hours of active labor without meds was nothing compared to this nerve pain. I questioned the decision to have surgery but in the end, decided that for the sake of my family I really needed to do it. While I could survive with the pain, I wasn't really functioning and the pain was making me really irritable and I was snapping at my kids. They really needed their mommy back. It has been a slow recovery, but the key is I am recovering. I am now 6 weeks post op and off all meds except for occasional Tylenol. I do have some pain (especially after PT) but nothing compared to the presurgical pain. I am pretty much back to a normal life and it's great to enjoy my family again.

The recovery and results from this surgery really seem to vary tremendously, which makes it difficult to make the decision to go ahead with it. It really is a quality of life issue. Keep learning as much as you can about it and if you have any other questions, this is the place to ask.

Best wishes.[/QUOTE]

CT MOM...THANKS FOR YOUR REPLY...

I see that we have a lot in common...prior to surgery...Your POST is a positive one for me...But I am still a bit frighten of the mere thought of surgery...The surgeon & his nurses all adviced me NOT to have surgery UNTIL I AM POSITIVEthat this is what I WANT...otherwise...without a positive MINDSET...recovery could/would be DIFFICULT...(I AGREE)

So I have to do my homework here...only problem is I can only handle so much ONLINE because of the pain...Pain to my neck/ankle/knee...ANYWAYS!

Thanks for your time in addressing my post...I do appreicate it...thank you!

Wishing you a speedy recovery!

Blessings...
Nervous Mommy





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