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Spinal Cord Disorders Message Board

Spinal Cord Disorders Board Index

I just signed up. I had my first fusion in 1992 (C5-C6) with a bone from my hip. I gained back most of my strength, except I encountered some atrophe in my right pectoral muscle and on the right side of my neck. I managed to deal with some on-going pain without medication.

My second surgery was in 2000 on C4-C5 with a cadavar bone and a titanium plate. I have much more atrophe on my right side now. My trapisius muscle, triceps, and about two to three ofther muscles on my right side are noticeably atrophied.

I have constant pain, headaches at the base of my skull, numbing pain down my arm into my hand when I overdo things at work. I cannot sit on hard surfaces. I cannot sit without back support, and I cannot sit very long at all without pain. The weather changes contribute to my pain, as does lack of sleep or a long day.

I have tried Neurontin with no effect; Celebrex with no effect and ulsers. I cannot tolerate the epiderals due to the narrowing of the nerve canal. I have been on oxycontin, oxycodone, and percocet, for pain. I quit taking all the pain meds because I don't want to end up becoming an addict. Main tolerance to the medication kept increasing, putting me right back where I was before. I sometimes take sonata to get to sleep because I know that rest is the key. I currently take Affexor, but that is it.

I have seen all the specialists and doctors. And they have all invoiced me for their input, but they've done nothing for my post-surgery pain problems.

I now want to go outside the box and find something my doctors haven't considered.

Sick and tired of being sick and tired
Help me please. Any ideas?
Best option is to see a pain management specialist and drop by the pain management forum for a better understanding of what a real PM does..
Just a quick bit of information...
People with true and chronic pain rarely if every become addicted to pain medications, studies have proven this time and time again, what happens is your body has a tolerance level, as time passes tolerance increases requiring more or different medications. There's nothing wrong with being on medications if you really truly need them.
If Celebrex caused problems then try Bextra with Prevacid or something similiar to protect the stomache, as well as you probably should be on some sort of pain medication.
As for Effexor, it is an anti-depressant, it wont' do a whole lot for your pain as you know.
You have the right to have some sort of a quality of life, don't be in fear of addiction, again, it rarely to never happens.. do a bit of homework and you'll see.

Good luck to you.
i have pain from my acdf surgery on c5, c6, c7 in august of 2002.
i see a pain management doctor and it has helped me to deal with this constant pain in a way i could not have imagined
i was also afraid of getting addicted to pain meds, but thankfully the pain management doctor and pain management psychologist helped me to understand i was going to be okay.
i also found physical therapy and that has helped me to get some relief and new ways to live.
the one thing i did after months and months of listening to the surgeon who was useless, was to take charge of my care and if necessary to see different doctors to get better then i was going to see them.
i have file folder after file folder of my medical records and the surgical records on my dining room table. i am the one in charge now, and it has been wonderful.
i wish you the best of luck in dealing with your pain and hope it gets better for you

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