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Spinal Cord Disorders Message Board


Spinal Cord Disorders Board Index


I echo the previous posts. Yes to tingling, yes to headaches. I just posted something about this on the board to Mumof3fairies on headaches, if you want to read that post.

No offense to you or anyone else on this board, but I find it very annoying that they are trying PT before they image you... I realize that some docs, usually HMOs will do this to save $$$, and to save you from unnecessary testing - it's important to have the Cspine area imaged. Personally I would push (I'm pushy) for a Cspine and brain MRI asap. This way you know if it is a Cspine issue or just a muscular issue. And if it is migraines (and yes, migraines can cause pain in shoulders, neck, and the tingling on their own) they may or may not have some scarring or spotting on the brain scan. Your doc will be able to 'see' the migraines. This way you're treated properly...

I was misdiagnosed as migraine for many years... and I'm very angry about it.. if I were imaged properly in the first place, I would have maybe started treating my neck better years earlier and possibly have less bone spur etc. than I do now.. maybe not, but yes, maybe I'd have fewer problems had I known about it earlier.

And again, not to scare you, sometimes PT is not good for those of us with CSpine issues, depending on what is going on in there. My PT made my neck worse when a fairly inexperienced therapist tried some manual manipulation on a facet joint and caused my then unaffected left side to start having electric shocks, spasms, etc...

So I would seriously push for the imaging. Find out what is really going on and then come up with a treatment plan. Right now the docs are going off of educated guesses based off of stats... and that is just so wrong in my mind.

Sorry if this post seems cranky or pushy or out of line. I'm just very passionate and your post reminded me of so many posts I myself posted years ago... just wondering what the heck was up with my head and neck and face and shoulders - while my docs just fed me imitrex.

Good luck to you -
Cheryl
Hey ICC, i DO feel for ya.geez c spine/shoulder pain,ya think MAYBE there IS a connection??duh.some docs just kill me with there unbelievable level of total ignorance.for YEARS i was told that my under the shoulder blade pain was in NO WAY comming from the wonderful little cavernoma inside of my spinal cord.two neurosurgeons told me,no way,it was not possible.my cav is/was at the c 8 nerve level.by the time i finally got to the office of the head of neurosurgery at the university of MN,i was like ready to make that final leap over the freeway overpass down the street.honestly,if not that,what the hell was it?this NS was my true savior.honestly,one of the first things that came out of his mouth was YES,my cav was probably the key trigger for this hidious prying/pressure type of pain i was having,and he not only told me,he showed me how this was possible with a little drawing he made for me showing me just how the nerves actually run below the vertebrae.honestly,i was never so happy to hear 'bad' news.

finding a very knowledgable and experienced NS is really the biggest thing.the ironic thing was one of my NSs that i had seen before,and who did my c spine surgeries,was actually taught by this NS,he had gone to the U of M for med school.i think he must have either missed that particular lecture on how the nerves run or partied too much the night before and slept thru it.

if anyone takes the time to actually see how the nerves actually run thru the c spine,they pretty much totally innervate the entire shoulder area and the entire upper back,not to mention the ones that run down from the head and loop back up into it at the c 8 junction.HELLOOOO??

because of the mess i now have at my c 8 from the cavernoma resection surgery,my head/face,legs feet c spine and a huge area where the tracts and other nerves that were damaged run,i literally have some level affectation from head to foot.kind of that domino effect?

my facial stuff,the tingling and the off and on numbness will just come and go when it wants to,like right now,the tip of my nose is tingling,wasn't there like ten minutes ago.i do have some sort of loss of a level of sensory at my upper lip area as well and really am not sure if this is loss of prioperception(which i have in certain areas,mostly my legs)but i cannot tell whether my mouth is open or closed when i am not actually looking at it or touch it with my tongue.wierd,really.just one of my many 'gifts" from the nerve and tract damage that is all stemming from my c spine and not my aneurysm in my brain.yes,we have had fun lately.god i hate docs,really.espescially the ones that are just never ever wrong in their Dx and are not willing to own up to mistakes of any kind.yea,you ARE human just like the rest of us.

i am off my box now,sorry to ramble.just slap me please.marcia
jenny---have an ugly neck. worst is between the C5-6 C6-7. have all the shoulder pain, left ear, face timgling, headaches that start right below my skull and go up the back of my head. started to have palps recently and never considered that they would have anything to do with it. i will wait for an answer with you. never thought the ear pain was coming from neck either. also have an impinged rotator cuff so who knows what's coming from what.:confused:





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