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Spinal Cord Disorders Message Board


Spinal Cord Disorders Board Index


Moonchaser,sorry we kind of got off track here with regards to your question on 'self treatment"?that,in some cases,can be dangerous.its just certain movements with certain types of ongoing damage and deterioration and with any stenosis in the central canal as you have,could in some cases,cause more damage than benefit.if you do want to do this,it really does need to at the very least,be monitored by someone who knows about it.i know you are waiting for just that,but it can lead to problems if you are not doing a particular excercise properly,you know what i mean?you just need to make certain first that what you are doing is plain safe with your type of c spine problems.i would be very hesitant myself to go ahead without the expertise of a good PT person telling me what is and isn't okay according to what i would have wrong in the c spine area first,thats all.

at least you are aware you actually have certain issues,alot of people don't have a clue what their particular issues are in there and get sent to PT only to find out much later that what they had been doing was actually causeing more damage.you just need to be very careful.

getting a good massage in most cases probably wouldn't hurt you as long as the person doing it knows to tred very lightly around the c spine area.but getting those tightened muscles all worked out in the upper back will probably help alot with the tightness and pain you can get from just c spine inflammation.just make sure you go to someone who has a good reputation.but a massage really can help,that i do know.

so what are your next steps here?what doc are you planning to see,or have you not gotten there yet?just one thing to remeber here,if they want todo anything within that central canal regarding the stenosis,it will have to be a neurosurgeon,just because of the area involved,i really don't think any other type of surgeon is actually allowed to go within that area as its too close to the actual spinal cord.but to take care of the other issues,just finding a good surgeon with alot of experience and overall knowledge will work for that.

its pretty much all up to you and what and who you feel the most comfortable with.alot will depend on just how severe the canal stenosis really is.and you always have the option of getting a second opinion with most insurance companies.i saw three seperate neurosurgeons before finding the one that actually had the best overall knowledge(that was the right information)of dealing with cavernous hemangiomas inside the cords and brains before i actually consented to having that removed.this was the head of neurosurgery at the U of Mn.he had thirty years of experience,and had done or assissted with hundreds of lesion resection surgerys within the cord.that was good enough for me.the big thing you need to ask any possible surgeon is how often they have done this type of surgery/how many procedures have they done?you are hiring these people to do your surgery and don't ever forget that you are the one who is in charge of who does that.you almost always have options in most cases.

sorry we didn't get your questions answered sooner.keep us posted on how things are going.just be very careful with any excercises,K?good luck,Marcia
Hey there! I was just going to ask you all if we could make this all about me again just love one another and all that. :) I'm just kidding. Thank you to EVERYONE for your input. I literally have no one else to talk to who is educated in this area and it's been reassuring to know there are others out there in similar situations. As a "newbie" I am weirdly comforted in finding this forum. I look forward to coming here each day and reading the posts.

Thanks Marcia for the caution about doing the McKenzie exercises strictly out of the book. I did sort of stop doing them except for the super simple "turtle" neck stretch for a couple reasons. The first being I didn't know if it was good to feel shooting pains down my arm every time I did exercise 2 and also because my old PT said "you're doing what by yourself?" when I told her I bought the book and was taking a "screw everyone I'll fix myself" mentality. She echoed what you said about supervision, especially at first.

[QUOTE=feelbad;2785909]at least you are aware you actually have certain issues,alot of people don't have a clue what their particular issues are in there and get sent to PT only to find out much later that what they had been doing was actually causeing more damage.you just need to be very careful.[/QUOTE]

I fear this actually may have happened to me somewhat. I was sent to PT the first time for a partially torn rotator cuff. The PT doubted it from the get-go thank goodness, thinking the problems were more postural related. One thing I've done though that maybe I shouldn't have been doing was working with weights. I just don't know - and in their defense, neither did they. My doc never said he wanted an update, or to see me again. I've initiated it all because I know my body better than anyone, and I know when something isn't right. Looks like I'm finding out just how right I was!

[QUOTE=feelbad;2785909]getting a good massage in most cases probably wouldn't hurt you as long as the person doing it knows to tred very lightly around the c spine area.but getting those tightened muscles all worked out in the upper back will probably help alot with the tightness and pain you can get from just c spine inflammation.just make sure you go to someone who has a good reputation.but a massage really can help,that i do know.[/QUOTE]

I want to get a massage so bad! I am so busy with work, a four hour commute, taking care of my critters, and on top of that re-enrolled in college courses. Where I live, I don't know how educated a massage therapist might be, (it's sort of rural here) but I can definitely put a "stay away from my c spine area" condition in there. I think I might try and get a massage Friday night at the local upper tier salon.

[QUOTE=feelbad;2785909]so what are your next steps here?what doc are you planning to see,or have you not gotten there yet?just one thing to remeber here,if they want todo anything within that central canal regarding the stenosis,it will have to be a neurosurgeon,just because of the area involved,i really don't think any other type of surgeon is actually allowed to go within that area as its too close to the actual spinal cord.but to take care of the other issues,just finding a good surgeon with alot of experience and overall knowledge will work for that.[/QUOTE]

I have to wait until 2/22 to go back to see my doctor. The doctor I am with now is a Physical Medicine and Rehabilitation specialist. I was referred to her by my orthopedic surgeon. I really like her, but I've only had my initial appointment with her. That was when she insisted on a cervical MRI and immediate consultation with a McKenzie-certified PT (that same day in fact).

I haven't been back to her since she got my MRI results. I am hoping that the fact that no one called me in a panic means she wasn't overly concerned right away by my results. She doesn't know yet that I haven't been able to do the McKenzie-based PT. My goal is to convince her to let me go back to my old PTs, or realistically, I can't see myself able to do any PT at all with my new work schedule and lifestyle. (My old PT has longer evening hours). To compound all this, I had to push the appointment back because with switching jobs, I'm in a 30 day window of no medical insurance. I just hope that I don't get hit with a "pre-existing condition" clause problem when I do start treatment again. My new insurance company is refusing to answer any questions for me until I pass my effective date with them. They are driving me nuts - I just want to know if I'll be covered or need to second mortgage the house. LOL. Anyway, I really hope my doctor doesn't bring up the "s" word - surgery. I hope that she wants to pursue non-surgical conservative treatment first. If she doesn't, I now know to definitely ask detailed questions about neurosurgeons and specialties!

A concern I do have about having to wait so long between appointments is that I'm noticing that weakness in my left arm seems to be continuing, and maybe even getting worse. I am consistently noticing the tingling and numbness in that hand too now. I'm trying to tell myself that it's really a problem and not "in my head" because I know a little more now. I can remember telling my old PT way last summer that I had a little tingling, but he thought it was probably just a nerve impingement due to something I'd done. It also was no where near as frequent as I notice now. I'd say I'm noticing it daily now, whereas last summer it was maybe once every two or three weeks.

One thing I haven't mentioned here is that the McKenzie PT I saw on my initial visit did a fibromyalgia test. I apparently tested positive for it - 18 out of 18 tender points. Is this common with c spine injuries and problems? Is this even a can of worms I want to open here? I guess I'm just curious to know if others have had this brought up with them too. I've asked my old PT for a second opinion. I know when it comes to fibro that many docs can have a "call it fibromyalgia in the end if we can't figure out where the pain comes from" mentality.

[QUOTE=feelbad;2785909]
sorry we didn't get your questions answered sooner.keep us posted on how things are going.just be very careful with any excercises,K?good luck,Marcia[/QUOTE]


No, my thanks are to you and everyone else who has kindly chipped in with encouraging words, options, and shared experiences. We may have differing opinions, but what we do share is a similar problem and desire to help others. For that, I'm grateful to you all.





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