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Spinal Cord Disorders Message Board


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Hi Sammy, sorry I didn't back to you sooner. I'm going to try to give the shortest version I can because it all started from a car accident that I had 24 yrs. ago. Unfortunately, I wasn't dx'd until 4 yrs. ago. First the injuries from my car accident were my right arm was broken completely in to and it severed some of the nerves in my arm as well. The turn signal went all the way through my left hand leaving a permenant hole in the middle of my hand and severing the nerves in my hand. I suffered a hair-line fracture on both sides of my pelvis which are still there. This also left a bone chip floating around in my pelvic area that ended settling on my nerves. My ankle was twisted so bad that they told I would have been better of if it had been broken instead.

PS: I forgot the question about having pains in my chest. Yes, I had them in my chest and rib cage as well as muscles spasms in my front chest muscles. There have been times when I have bent over to tie my shoes and move the wrong way and ended up with severe muscle spasms in my chest. They were so bad I could hardly straightend myself up again.

The first problem sign started with my legs hurting real bad and all the jobs I had were stand up type. After standing on my legs from 8 to 12 hours a day when I would get off work my left would be just pure numb from all the standing. Next my feet start burning so bad that I couldn't hardly wear shoes when through numerous pairs. The next thing was my hair, I had real long hair. Then all of a sudden my hair starting thining out and I had little red sores all over my scalp. My scalp would get real tight and my head was just itch all the time, it even kept my awake at night. I would have real bad heataches that would start in my neck and then work their way up. No one seemed to know why and I was just being treated for arthrits.

Then one day at work my left shoulder went to hurting real bad and the next thing I knew my shoulder was drawn all the way up to the point my shoulder was touching my ear. I went home and after relaxing awhile it went down. Next day at work I had to use that arm more and the next thing I knew it was happening again and the pain brought tears to my eyes. I went to ER got a shot and it settle down for about 2 weeks. Then 2 weeks later the same thing happened again so I went to the doctor. He gave some prednisone and muscle relaxers and told me to stay out of work awhile. It never got better. Then my hands started turn red and they hurt and they burnt same with my arm and my elbow. In the end, I went to 3 specialist and nobody seemed to know anything except I had two dead nerves in my left arm and torticolis. Torticolis is severe muscle spasm in the neck and shoulder area. Then my shoulder and arm started hurting real bad and my shoulder was so sensitive to the touch. Next thing I know my arm start drawing up and everytime I would try to stretch it out pain would shoot up my arm. The muscle spasms also keep getting worser and worser. Finally, I saw a doctor who knew what RSD was all about and when I was told I suffered from RSD. He also told me that I had what was call Cervical Dystonia and I could not use my left arm at all and had to limit the use of my right arm to keep from having such severe muscle spasms.

Sorry for the long story but that's how my condition came about and I wasn't dx'd with it until 4 yrs ago. Due to it taking so long to get the correct diagnoises lead to the loss of my left arm. Also forgot to mention that my arm kept getting weaker and weaker. I hope this helps you understand what RSD is like, it is a very painful disease that has no cure for it. If you have any more questions just ask or check out the Reflex Sympathetic Dystrophy Board which also lists the signs of RSD at the top of the board.
My GP was the one who dx'd me because he knew what RSD was. He told from the begining it was a very painful condition and that there was no cure and it would get worse over time. Basically, all any doctor could do with help with the pain. I know this must scare you because it has me a many of a time and even had spells where it felt like I was about to faint. It also is located in a bad spot of the body especially when the nerve goes pulsating and your first thought is, is this a heart attack? I've had muscle spasms in my chest and shoulder that would be so bad it's like someone is cracking my ribs into. I don't if this would help but if you know for that these are muscles spasms that you're experiencing and nothing else more serious. When I get real bad muscle spasms and the medicine doesn't relieve them I got to the ER. I get a shot of Stedral Medral which is a shot of prednisone and something else mixed in with it. This will at least calm down the spasms and I mean just as fast as they give you the shot, you wouldn't believe how fast. It not a pain medication that makes you loopy or nothing because I have had a many of them and be able to go get in my car and drive home. This is something that might help you relieve the spasms and it will would way faster than the any muscle relaxer. I do hope you can find some relief because I know what it's like to live with pain everyday and severe muscle spasms. I'm just starting to get over a severe round of them that have been plaquing me for over a week. They started in my shoulder and chest then move up to my neck and then back down into my lower back. Today is really the first day that they haven't been that bad so far. If I have to go through another day like the last two previous days, I know I will be in the ER. I hate to go and sit and wait but I can't take another day of them. I hope you're having a better day today.





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