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Hi Sammy
I also have been experiencing pain which starts like tension at the base of my head with painful cracking and popping when i turn my head, this then radiates over to the top of my head and at times above my eye and at times it feels like sinus no set pattern. I have been to see my GP and she is sending me for blood tests on 17th so will see if anything shows up, like you i have been thinking it is from my neck, but late at night the mind tends to wander and panic sets in thinking all sorts of medical problems, will keep you informed, take care
Maisie-jane x
Masie & AZ, thank you so much, I am really trying to put some pieces together here. Yes I do believe there are some spasms involved & my neck hurts when these headaches occur. Had a ct done at hospital, nothing there.
I would get these when my neck was worked on in any way during PT. Finally the doctor I was being treated by at the time said the PT was to stop any therapy around the neck. I have to believe its all in that upper back/neck. Alot of cracking & my neck feels so tense & stiff some days. I am having so much pain the last several days in my upper back & scapulas. Could not even let my left scapula touch the chair it was so sore. These headaches are in a league of their own, nothing alleviates the pain. Scares me. I can feel it starts right at the base of the neck & also feel a bugle in the neck around what I am assuming is one of the discs. I am waiting to get into my PM to get the results of the last MRI, I dont get why nothing signifigant shows. I think the PM is hoping the the back surgeon he wants me to see will do further testing such as a myelgram (sp) or a test I have yet to have done.
Any opinions? My hands & arms/shoulder are driving me crazy with pain lately. Mornings being the worst. When these headaches start seems like the start at the back of the head stemming from the neck. Then engulf the entire head. Pain much like a migraine but on both sides not just one. My eyes would hurt just to open them.

Please do let me know about your blood work results, I am curious to see what yor doctor is looking at.
I so appreciate your replies please share any opinions I am really trying to help my doctors to help me. Just getting worse. God bless, Sammy
Nicole, Can you tell me abit about your headaches. I know when I used to get migraines they were primarly on the left side. Ended up in the hospital with them a couple times.
These headaches have the pain of a migraine but cover most or all of the head & I can feel my neck sore & stiff when I get them. They really keep you down. I will tell you just had one yesturday & my neck hurt to where I could no press on it at all. I tried moist heat & no relief, at one point I thought it was making it worse. If I can, I take a small ice pack & put it at the base of the head on the neck, it actually helps. That is what I did yesturday & ended up falling asleep like that but it did get some relief. I grab the ice if I am home now, it seems to keep it from progressing & is the only thing that helps give me relief. No meds help thus far. I know the one I had that sent me into ER was so bad I could not move my eyes & at one point even keep them open, opening them was an effort because it actually hurt to do so. The pain was so bad I could not believe it. I just laid there & sobbed. I took some meds & my husband went to get me an ice pack. I fell back asleep with my jacket on, my husband was getting ready to take me to ER this was like at 4:00 am, but I was in to much pain to hold my head up & vomitting. Woke up with not being able to move my neck both times & the pain esculating, so ended up in ER anyway. The lights, like with a typical migraine were excrucitaing in ER. They wanted to keep me but do to being left in the hall because they were so crowded I declined. It scared me not to be able to move my head at all because of my neck. That was the worst one & I am afraid of that occurring again. I believe I was in full muscle spasm with my neck at the time & try to take my muscle relaxer at night now. I dont take them like I should because of the other meds I am fearful of being to tired.
At night I dont care, if they help me sleep & prevent that I take them.
I am on valium for the mucscles & it does help at night. Muscle spasms I believe come along with the neck problems & need to be treated.

Do you take anything for that or has your PT mentioned any spasms?
The PTs can feel when your muscles are spasming & if its bad. Mine in my chest were in constant spasm & it hurts.
I would try the ice, does not sound comfortable but it works for me more then anything. Probably due to inflammation. Moist heat may also work for you if you have not tried it. For me it just did not cut it. I also use essential oils that soothe, they do work. Even with my old migraines my mother in law would get me lavender oil to help relax me, now I use peppermint to & it does seem to soothe the muscles, but only the good stuff, along with some other oils. I have given some to my friends & they all love it. My one used it on her knee & was amazed on how well it worked. When your in this kind of pain I figure what do you have to loose? There is a company based out of michigan that will send you samples, I cant list the name or site but you may be able to find it if you are interested.
I know how bad it is & so feel for you, it takes over your life & can get to you. I hope you find some relief & please let me know how your doing. Good luck & god bless, Sammy

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