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Spinal Cord Disorders Message Board


Spinal Cord Disorders Board Index


Hi there, I am so glad you said you'd read these replies. We may or may not be as crazy as we feel but we're not alone. You are not alone. It is really hard for anyone who hasn't had this problem to understand. Sometimes what's even worse is the cheery "buck-up kiddo" from the acquaintance who had one-level ACDF surgery and bounced back to head up the company softball team. Even the pain management doctors reveal how little they understand. About 6 months ago, my pain management doctor told me how he could now empathize with his patients since he had woken up with a crick in his neck and it hurt for two days. Soooo, how can they grasp how much a "simple strength test" can hurt and how demoralizing it can be for something so "simple" to hurt so badly? It will pass in time. Sometimes when I am feeling the way you described I try to focus on the smallest increments of time or accomplishment - just to find something positive to focus on. examples of positive focuses - that I haven't had to cry out in 5 minutes; being able to breathing to create the ocean sound (the oojaye breath from yoga) without increasing the pain in my arm; or the fact that my dog can jump on the bed without that killing me. If that's not possible, if him jumping up kills, I go back to the breath. It's a mental trick. Another related trick is to find some kind of task - organizing my bedside table or a drawer in the bathroom, just to be able to DO something. Because focusing on what's not right or what's not possible right now will really keep you down. I recommend not being a hermit. My leaning is always to enter that hermit state but then when I do get out, even to do mundane tasks, I feel better. Even if you don't talk to anybody, go outside. Stick with it and let us know how you're coming along.
Hi helenoftroy. Thank you so much for replying!


[QUOTE=helenoftroy;3787363]Hi there, I am so glad you said you'd read these replies. We may or may not be as crazy as we feel but we're not alone. You are not alone. It is really hard for anyone who hasn't had this problem to understand. Sometimes what's even worse is the cheery "buck-up kiddo" from the acquaintance who had one-level ACDF surgery and bounced back to head up the company softball team.

Or even better the "buck up" from your NEW pain doc!


Even the pain management doctors reveal how little they understand. About 6 months ago, my pain management doctor told me how he could now empathize with his patients since he had woken up with a crick in his neck and it hurt for two days. Soooo, how can they grasp how much a "simple strength test" can hurt and how demoralizing it can be for something so "simple" to hurt so badly? It will pass in time.

Yes it will pass in time, thank you for reminding me.



Sometimes when I am feeling the way you described I try to focus on the smallest increments of time or accomplishment - just to find something positive to focus on. examples of positive focuses - that I haven't had to cry out in 5 minutes; being able to breathing to create the ocean sound (the oojaye breath from yoga)

I am not familiar w/oojaye breath, I will search net today for info.


without increasing the pain in my arm; or the fact that my dog can jump on the bed without that killing me. If that's not possible, if him jumping up kills, I go back to the breath. It's a mental trick. Another related trick is to find some kind of task - organizing my bedside table or a drawer in the bathroom, just to be able to DO something. Because focusing on what's not right or what's not possible right now will really keep you down.

Yes again, will keep busy.



I recommend not being a hermit. My leaning is always to enter that hermit state but then when I do get out, even to do mundane tasks, I feel better. Even if you don't talk to anybody, go outside. Stick with it and let us know how you're coming along.[/QUOTE]

Blessings to you





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