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Spinal Cord Disorders Message Board


Spinal Cord Disorders Board Index


I too have a small syrinx 7mm x 1mm. I don't have Chiari malformation. So far doctors say my syrinx is to small to cause any symptoms. I originally went to doctor for headaches. The headaches were constist never letting up, nothing I took seem to work the pain was horrible. MRI came back with a sprinx - lot of good that did me. I still have headaches every day some worse than others. It feels like ants are crawling up the right side of my neck onto my face. Sometimes it feels like my right ear is wet or draining, yet when I check nothing is there. My right arm tingles and goes numb all the time. Sometimes I have tingling under my chin on the left side. My legs feel like they are made of lead at times. My back & shoulder hurt everyday. I also have charly horses a good bit and muscle spams, any one have this? At times it feels like my right hip is on fire, again its not but it burns like fire. My scalb and limbs fall asleep all the time, its really bad at night when I am trying to sleep. I asked my N.S, why and what should I do about these symptoms I was told to ingore them unless my face drooped and didnt return to normal or if I stuck out my tounge and it was crooked, then I am to report to the nearest emg room. I am at a lost as what to do next. I would welcome any and all suggestions. Thanks and God Bless you all
[QUOTE=Deanag;3988888]I too have a small syrinx 7mm x 1mm. I don't have Chiari malformation. So far doctors say my syrinx is to small to cause any symptoms. I originally went to doctor for headaches. The headaches were constist never letting up, nothing I took seem to work the pain was horrible. MRI came back with a sprinx - lot of good that did me. I still have headaches every day some worse than others. It feels like ants are crawling up the right side of my neck onto my face. Sometimes it feels like my right ear is wet or draining, yet when I check nothing is there. My right arm tingles and goes numb all the time. Sometimes I have tingling under my chin on the left side. My legs feel like they are made of lead at times. My back & shoulder hurt everyday. I also have charly horses a good bit and muscle spams, any one have this? At times it feels like my right hip is on fire, again its not but it burns like fire. My scalb and limbs fall asleep all the time, its really bad at night when I am trying to sleep. I asked my N.S, why and what should I do about these symptoms I was told to ingore them unless my face drooped and didnt return to normal or if I stuck out my tounge and it was crooked, then I am to report to the nearest emg room. I am at a lost as what to do next. I would welcome any and all suggestions. Thanks and God Bless you all[/QUOTE]
Hello
I am so glad I came across your post. I also get the feeling of fluid leaking form my ears and also in m y scalp. Of course the DR's look at me like I am crazy. I stopped telling them about this feeling because I don;t want to get more aggravated.
I have a cervical and thoracis syrinx w/o a Chiari.
I was diagnosed in 2003...was having an MRI for low back pain from a fall and the syrins was noticed. I had NO symptoms from it till a few months ago. I also was diagnosed with Fibromyalgia. The NS and NL all say that even though the syrinx is long since it is thin it CAN'T be causing ANY of my symptoms ( yea' right!) and there is nothing that can be done for me.
All I know is that I am miserable.





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