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Spinal Cord Disorders Message Board

Spinal Cord Disorders Board Index

aw yes, hair flipping; I haven't hair flipped in so many years due to this cspine horror. Had to change hair styles and found something I am happy with that isn't terribly short, yet noflipping involvement. Also, after 6 years, I don't flinch, startle outwardly or respond to anyone who says, 'quick, look at.....' Immediately, I learned to turn mostly from the waist with neck tucked. This works well while driving. So you will learn what moves you can make to minimize pain and don't listen to comments about how you aren't using certain muscles as you do what you have to do to avoid those crippling electric shock-like pains.

After so many years of pain, numbness, tingling and electric shocks, it all starts to 'minimize' and arms and legs and other nerve pathways just go numb with a pain mix. You mix that with the inability to grip, or trust grip, and your primary concentration becomes focusing on the job you are doing, instead of getting the job done while thinking of other things like you might be used to. If you are not fully focused on the task you are doing, the clumsiness and confusion can multiply, resulting in frequent frustration and possible feeling of inability to cope. I haven't noticed your age, but unless you are in your 80's, it's pretty hard to wrap your brain around it on a day to day basis.

Why am I telling you this? Because people who lack either the funds or medical care available might want to know what might happen and that they are not alone and yes, you might feel like you can survive the pain. It's what happens when the pain becomes not the same that is a serious concern as others will tell you on this board.

So it costs $400 here for cspine MRI if we don't wait the 3-6 month, dr descretional wait. Here, nothing is done until paralysis is iminent. That's what's ahead for some of us unless we buck ($) up and get out of here for surgery. I'm sure you are aware of the expense and aftercare and so on that would be compounded if you don't even live in the States.

So I empathize with what you are going through and I have been enduring the pain with little more than arthritic tylenol, which does very little for one whole hour.

I have S and L complications as well and the two can make things seem unbearable at times. So I understand the position you find yourself in and hope that you quit dropping coffee on yourself and worse and are able to adapt to what you are willing to 'tough out.'

blunt but sincere,

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