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Spinal Cord Disorders Message Board


Spinal Cord Disorders Board Index


sorry you are having to deal with this. i have a couple of questions for you if you don't mind. more info just really helps us to try and help you. did this doc you reported that severe ongoing temple pain to EVER actually send you for a good contrasted MRI that would at least try and see if ANYTHING that is a possible vascular issue may be or have been behind this? there are usually only two real underlying things that CAN cause sensory loss in us, and one is lack of good bloodflow to any given area it supplies, and the other is nerve damage/impairment of some kind. and sometimes you can have a bit of both depending upon exactly what the underlying problems are. but it most definitely takes a knowledgable neuro to simply start some more common sense and logical testing in the 'key' area(s) too to even know anything really.

while they ARE right about the neck nerves NOT being able to go up to the areas where your numbness actually is, unless they have done an actual best done WITH a contrasting agent type of MRI on your brain, they have NO real clue yet just what 'could be' the more underlying reason FOR that facial sensory loss. the area just below that temple(over the temporal bone) is where whats called the 'trigeminal ganglion' runs thru to the face, then seperates outward to innervate the facial areas it covers. that particular nerve IS a pretty wide range in coverage and does cover most of the more side to front parts of the face but runs from two seperate 'sides on into the face? do ya know what i mean? one side covers the right, and the other covers the left. these stop right at pretty much midline OF our faces. like half and half but innervated from different directions?

i have trigeminal damage in this area from my spinal cord surgery where they had to place my head into a 'headframe'. this frame actually screws into the top forehead down into the actual bone and right smack over the temporal bones too, and i mean INTO the bone. for the first year, i had my entire R eye felt like it was no longer a part of the rest of my face. it slowly got better, but i keep getting "twitching" at the outter corner of my R eye, also in a spot directly below that eye(about an inch down from eye) and at the R corner of my mouth too(all my crap IS only the R side). but this nerve is one you really NEED to look up just to see how this runs in correlation to where YOUR more prominent symptoms are. only you know for certain where this would be. and just see if that does fit within the trigeminal, and the way IT simply innervates. this would at least allow you to know what potential nerves are being impacted. this just 'could be' related to that more sudden ongoing headpain you had, esp if this was or is some type of a vascular malformation there? or even a smaller vessel that had a bleed. it just CAN happen unfortuently. but you DO need to know whats up if NOT spinal related, and more than likely it would be something vasc or nerve or a combo inside the 'head/brain area.

i would go back to yopur doc after doing some research on the trigeminal and ask him about simply ruling out or in, ANY potential issues that simply could be within your brain. using that contrast agent for this type of brain MRI REALLY does highlight all of the inner vascular really well and NEEDS to be added to the order for sure. otherwise, some vessels and things like certain aneurysms, depending upon location usually, simply can be somewhat hidden. my brain anuerysm never showed up on the non contrasted MRI i had had done, but DID on an MRA and a 3 teslsa acan. i have kidney disease so i cannot use contrast anymore. but this is what i would be asking my doc to refer me for if i was feeling what you were. and could use contrast. you just need to find the reasons for esp the facial symptoms since they can be stemming from a problem that could be many things but would almost have to be somewhere in the brain/head. some of your other radicu symptoms also could be interconnected in particular ways too depending upon whats going on in the brain as well as what you have in the lower c spine as well.

any good diagnosis simply takes doing the most logical types of tests for that patients actual symptoms. your doc should be doing this FOR you. common sense. i wish you luck with this. please let me know what you find out. marcia
I have trigeminal neuralgia, it developed after my c3-7 problems, and as others have stated, it has nothing to do with your neck nerves. But as I said, I developed facial pain and numbness, and have talked with many others who did also, you mentioned your ear aching, I also have burning tongue, jaw joint pain, twitching, and headache. I have all of this primarily on one side of my face. I have no clue why this would develop at the same time as my neck deterioration but I wanted to drop you a line or two and let you know your not alone. Best of luck.
[QUOTE=byoung6;4895048]I have trigeminal neuralgia, it developed after my c3-7 problems, and as others have stated, it has nothing to do with your neck nerves. But as I said, I developed facial pain and numbness, and have talked with many others who did also, you mentioned your ear aching, I also have burning tongue, jaw joint pain, twitching, and headache. I have all of this primarily on one side of my face. I have no clue why this would develop at the same time as my neck deterioration but I wanted to drop you a line or two and let you know your not alone. Best of luck.[/QUOTE]


[B][/B] Really....how did u get tested for c5 and up? I think my EMG and NCV test only covered c5 and down. Also if you don't mind me asking...Did you have a MRI of your brain and neck. Did they find any lesions for your TN?? Is your TN related to MS in any way?? Thank you so much for your reply.:)





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