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Spinal Cord Disorders Message Board


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:confused:Hi I have a right c7 c8 radiculopathy bilateral L5 radiculopathy and mild bilateral carpal tunnels and I am experiencing numbness and tingling of my left side face and my scalp and left arm. As well as muscle twitching which started after the numbness. Doctor says its not from pinched neck nerve but I think it is because all these symptoms happened at once after I had a weird temple headache that lasted 2 weeks. Then came weird twitching. Doctors say that a pinched nerve in the neck can not cause facial numbness or scalp tingling or even muscle twitches. I don't even know how I got this injured. I'm only in my mid twenties!!!

I have read on some sites it can and some sites it can not because the neck controls the arms, and shoulders. The pinched nerve in my back causes feet numbness and leg spasms. I'm confused but I am also convinced that my neck injury is causing my face problems. Right now at this very moment the middle of my lip is numb and my cheek just twitched. Now my hands are feeling numb. Earlier my neck started hurting and I had pins and needles in my shoulder. I really think this is due to my pinched nerves!!!! My doctor says that face symptoms might be MS but why is all this linked together and I have pinched nerves as well. My ear is also hurting but no infection. Someone please help me. Is anyone else out there having my symptoms????
sorry you are having to deal with this. i have a couple of questions for you if you don't mind. more info just really helps us to try and help you. did this doc you reported that severe ongoing temple pain to EVER actually send you for a good contrasted MRI that would at least try and see if ANYTHING that is a possible vascular issue may be or have been behind this? there are usually only two real underlying things that CAN cause sensory loss in us, and one is lack of good bloodflow to any given area it supplies, and the other is nerve damage/impairment of some kind. and sometimes you can have a bit of both depending upon exactly what the underlying problems are. but it most definitely takes a knowledgable neuro to simply start some more common sense and logical testing in the 'key' area(s) too to even know anything really.

while they ARE right about the neck nerves NOT being able to go up to the areas where your numbness actually is, unless they have done an actual best done WITH a contrasting agent type of MRI on your brain, they have NO real clue yet just what 'could be' the more underlying reason FOR that facial sensory loss. the area just below that temple(over the temporal bone) is where whats called the 'trigeminal ganglion' runs thru to the face, then seperates outward to innervate the facial areas it covers. that particular nerve IS a pretty wide range in coverage and does cover most of the more side to front parts of the face but runs from two seperate 'sides on into the face? do ya know what i mean? one side covers the right, and the other covers the left. these stop right at pretty much midline OF our faces. like half and half but innervated from different directions?

i have trigeminal damage in this area from my spinal cord surgery where they had to place my head into a 'headframe'. this frame actually screws into the top forehead down into the actual bone and right smack over the temporal bones too, and i mean INTO the bone. for the first year, i had my entire R eye felt like it was no longer a part of the rest of my face. it slowly got better, but i keep getting "twitching" at the outter corner of my R eye, also in a spot directly below that eye(about an inch down from eye) and at the R corner of my mouth too(all my crap IS only the R side). but this nerve is one you really NEED to look up just to see how this runs in correlation to where YOUR more prominent symptoms are. only you know for certain where this would be. and just see if that does fit within the trigeminal, and the way IT simply innervates. this would at least allow you to know what potential nerves are being impacted. this just 'could be' related to that more sudden ongoing headpain you had, esp if this was or is some type of a vascular malformation there? or even a smaller vessel that had a bleed. it just CAN happen unfortuently. but you DO need to know whats up if NOT spinal related, and more than likely it would be something vasc or nerve or a combo inside the 'head/brain area.

i would go back to yopur doc after doing some research on the trigeminal and ask him about simply ruling out or in, ANY potential issues that simply could be within your brain. using that contrast agent for this type of brain MRI REALLY does highlight all of the inner vascular really well and NEEDS to be added to the order for sure. otherwise, some vessels and things like certain aneurysms, depending upon location usually, simply can be somewhat hidden. my brain anuerysm never showed up on the non contrasted MRI i had had done, but DID on an MRA and a 3 teslsa acan. i have kidney disease so i cannot use contrast anymore. but this is what i would be asking my doc to refer me for if i was feeling what you were. and could use contrast. you just need to find the reasons for esp the facial symptoms since they can be stemming from a problem that could be many things but would almost have to be somewhere in the brain/head. some of your other radicu symptoms also could be interconnected in particular ways too depending upon whats going on in the brain as well as what you have in the lower c spine as well.

any good diagnosis simply takes doing the most logical types of tests for that patients actual symptoms. your doc should be doing this FOR you. common sense. i wish you luck with this. please let me know what you find out. marcia
SG, what were the results of your EMG/NCV? these reports usually state right at the very top, either "normal or abnormal' EMG, if something was off with velocitys tested. why did they "only' do from c 5 on down and not simply start AT the top then down(since they were there anyways)? do you have your own copy of THAT report? if not, get one and also START keeping copies of ANY and ALL testing results simply so you HAVE your own medical file at home and more importantly, so you can also read thru everything yourself. i have been doing this for many years now, for me and my son, who also has major medical problems. it helps in many ways just to always have your own stuff in hand.

i just love ins co's who could tell you NO to VERY needed testing when they had to have been told what your symptoms were, and esp that temple headpain and could STILL deny you ANY inside your brain type testing. i would not go the MRA route just yet only because you are still in that 'diagnostic phase" and the fullest look at the whole brain is simply VERY needed right now. they would NOT be able to see the softer tissue with just an MRA, as in any possible 'other' types of problems including to rule out any possible MS lesions. the MRA is ONLY all blood vessel structures and nothing else(the films look like some kind of really messed up highway map with squiggles like all over the place). the contrasted MRI tho IS an absolute need just to see inside your brain and head in the very best ways(along with also getting that look at the spinal too). like i mentioned before, that contrast WILL very much highlight your major blood vessels and more than likely would be able to see any possible forming vascular problems and also would be able to see if you had ANY actual bleeds of ANY kind. they look for what is called "hemosiderin staining". this is the iron deposits that just get left behind when anything bleeds inside the brain or the spinal cord. the CNS tissue just will absorb every other part of our blood BUT the iron in it. thats what they look for basically, iron 'deposits" for evidence of bleed(even any older bleeds would STILL show). so just obtaining that one contrasted MRI to start would help alot. you are just in the test and rule in or out phase here. once they are simply able to see inside there and know if there is anything there at all, that dictates kind of what comes next in this ongoing saga we just go thru whenever we are trying to find 'reasons' for our symptoms. your doc just ordered ALOT of what i think your ins co may have 'felt" was a bit much all at once so they just denied everything kind of thing? if he had ONLY started with that contrasted MRI, they probably may have paid out for that. just guessin here. ins cos unfortunetly HATE to pay out money anyways so who knows. but they 'should have' at the very least with what you had as symptomology, okayed the contrasted MRI and allowed THAT much, just for ruling out a possible brain bleed or forming aneurysm considering.

the main reason my anuerysm did NOT show up on plain MRI was that it was still thankfully in the smaller stages(i had absolutley NO headpain with mine) and it was also located right in the bend of a 'branch' artery so it was just hard to fully make out the outpouching of that without the needed contrast(it more than likely would have shown had i been able to do it WITH contrast tho). thats when i was sent for the MRA which totally saw it all perfectly. my only real symptoms with mine was heat flushes from the middle top of my head that would just 'flush' down into my c spine then gone. and i just 'felt" kind of 'off" inside my head. my wonderful neurosurgeon who had also done my cord surgery simply had a "hunch' and sent me. i WAS shocked tho that i had one. unfortuently i no longer have that amazing NS since he retired on me in 06. now i am trying to even find one who will just touch me with the mess i now have in my c spine. and so it goes.

has your doc tried or have you actually called the ins co to see if they would at least okay that much? i have had to make many lil 'calls' to my ins co over the many years of dealing with all my ongoing crap stemming from my cavernoma inside my cord crap then the aftermath of dealing with my deeper spinal cord injuries from the resection surgery to get it the heck out before another bleed occured. if you can simply make them 'feel' for you and humanize yourself to them, it CAN usually work out in your favor. this HAS worked for me when something WAS desperately needed and i was denied. i spoke to the woman in charge at my ins co and after telling her what i was dealing with and then asking her, 'what would YOU do if you were in MY shoes', there was a pause in the conversation, and THEN i got a badly needed referral. it could work if you have not yet tried talking directly TO your ins co. hopefully your next ins co WILL okay at least the initial needed testing if these people wont. but it wouldn't hurt to give it a shot. then you wouldn't be slamming the NEW ins co with a ton of stuff right away? just a thought.

you just DO deserve and need some answers and a real diagnosis of what IS generating the facial symptoms, and all your radicu stuff too.

while you do share some similarities with SG here, it really 'sounds like' two different possible triggers? but when it comes to the human body and just what IS even possible, it really would be hard to say. we ARE all soo very highly individual in how even 'our' own anatomy can be down to where certain nervesor even organs 'should be located' but are a bit off the norm too. even our dermatomes can overlap in certain areas depending on how 'we' are created then just born that way. take care, marcia





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