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Spinal Cord Disorders Message Board


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Sorry to hear of your pain...

I don't see you mention any type of nerve pain medication like Neurontin, Cymbalta, or Lyrica. This can be very helpful if any of the spurs are touching nerves. This is where an opiate does not touch that type of pain.

And without ever having any type of surgery and only being on Morphine...I don't think there is a Dr. out there that would ok going to an intracthecal pain pump. That is for people who have literally had numerous surgeries to no avail, and have tried every single pain med out there.

So..you are at the beginning of this journey where a possible non invasive surgery can help things..

Have they done any injections? How about physical therapy? Ultrasound massage, acupuncuture, aqua therapy, biofeedback..etc.

I also don't see a muscle relaxer to take as needed. This would be Flexeril, Robaxin, Skelaxin, Baclofen, or Zanaflex. Again...an opiate does not really help with muscle spasms.

These two types of medications for nerve and muscle pain would help you use less Morphine because they will help lower your pain a bit.

It could be that spending so much time at home or in bed has now caused your issues to get even worse. An x-ray of your lumbar area is not going to give them a good view like a MRI will.

Being at a healthy weight, eating properly, drinking water, and not smoking are all crucial in helping pain levels as well as spine issues.

What type of Dr. are you seeing this Monday? You need to be seeing a Board Certified Neurosurgeon or BC Orthopedic surgeon to go over the results of your MRI and take a look at your lumbar area...

You only mention pain though in your back and not a lot of numbness or loss of feeling...do you have this? The downside is that even if you have a bulging or herniated disc in your lumbar area....by laying in bed it will make this even worse. It's one thing to rest for a few days when having a "flare" of pain...

But daily exercise is so important...

I've had 3, two-level, cervical fusions as well as I have active severe herniations right now. Two in my lumbar area and one in lower cervical. As well as stenosis...bone spurs...etc.

But I get up and walk 7 days a week. I have built up to 1.2 miles a day. I'm not fast...but I do it....I also do light stretching and yoga in the am/pm. And I also use a muscle relaxer when needed for bad spasms.

The good news is that 85% of those with spine/disc issues have them resolved non surgically. But you have to be a participant in all the modalities and the more you use...the less you rely on an opiate to bring down all your pain. I only went on MSContin after my 3rd fusion surgery....I had also had foot surgery and a lap for ovarian cysts...

I haven't changed my dosage in over 3 years because I have so many other ways to help lower my pain so it keeps my tolerance from building with my medication.

I'm actually quite surprised by the dosages your PM has you on without any type of severe diagnoses or previous surgeries..

The key is meeting with the type of Dr. I mentioned and seeing if you are surgical..and that can help your issues....or non surgical and then using a comprehensive approach to your pain issues.

There is a difference between regular pain, and pain that is due to an injury or causing more injury. Even with all my issues...I have asked the Dr. what I can do that may cause more pain...but not further injury me. This is why walking is so good even though it may hurt...it's not causing any damage.

So....I truly hope that you can get answers either way with surgery or no surgery...and then either work with this PM or a new one that finds much better solutions for you with all the modalities I mentioned....adding some other medications if needed...and helping you get back to living again. There should be no reason you are living your life in bed and missing out on all the activities with your family..

I wish you luck...
[QUOTE=Ilovemycutedog;5064523]Sorry to hear of your pain...

I don't see you mention any type of nerve pain medication like Neurontin, Cymbalta, or Lyrica. This can be very helpful if any of the spurs are touching nerves. This is where an opiate does not touch that type of pain.

And without ever having any type of surgery and only being on Morphine...I don't think there is a Dr. out there that would ok going to an intracthecal pain pump. That is for people who have literally had numerous surgeries to no avail, and have tried every single pain med out there.

So..you are at the beginning of this journey where a possible non invasive surgery can help things..

Have they done any injections? How about physical therapy? Ultrasound massage, acupuncuture, aqua therapy, biofeedback..etc.

I also don't see a muscle relaxer to take as needed. This would be Flexeril, Robaxin, Skelaxin, Baclofen, or Zanaflex. Again...an opiate does not really help with muscle spasms.

These two types of medications for nerve and muscle pain would help you use less Morphine because they will help lower your pain a bit.

It could be that spending so much time at home or in bed has now caused your issues to get even worse. An x-ray of your lumbar area is not going to give them a good view like a MRI will.

Being at a healthy weight, eating properly, drinking water, and not smoking are all crucial in helping pain levels as well as spine issues.

What type of Dr. are you seeing this Monday? You need to be seeing a Board Certified Neurosurgeon or BC Orthopedic surgeon to go over the results of your MRI and take a look at your lumbar area...

You only mention pain though in your back and not a lot of numbness or loss of feeling...do you have this? The downside is that even if you have a bulging or herniated disc in your lumbar area....by laying in bed it will make this even worse. It's one thing to rest for a few days when having a "flare" of pain...

But daily exercise is so important...

I've had 3, two-level, cervical fusions as well as I have active severe herniations right now. Two in my lumbar area and one in lower cervical. As well as stenosis...bone spurs...etc.

But I get up and walk 7 days a week. I have built up to 1.2 miles a day. I'm not fast...but I do it....I also do light stretching and yoga in the am/pm. And I also use a muscle relaxer when needed for bad spasms.

The good news is that 85% of those with spine/disc issues have them resolved non surgically. But you have to be a participant in all the modalities and the more you use...the less you rely on an opiate to bring down all your pain. I only went on MSContin after my 3rd fusion surgery....I had also had foot surgery and a lap for ovarian cysts...

I haven't changed my dosage in over 3 years because I have so many other ways to help lower my pain so it keeps my tolerance from building with my medication.

I'm actually quite surprised by the dosages your PM has you on without any type of severe diagnoses or previous surgeries..

The key is meeting with the type of Dr. I mentioned and seeing if you are surgical..and that can help your issues....or non surgical and then using a comprehensive approach to your pain issues.

There is a difference between regular pain, and pain that is due to an injury or causing more injury. Even with all my issues...I have asked the Dr. what I can do that may cause more pain...but not further injury me. This is why walking is so good even though it may hurt...it's not causing any damage.

So....I truly hope that you can get answers either way with surgery or no surgery...and then either work with this PM or a new one that finds much better solutions for you with all the modalities I mentioned....adding some other medications if needed...and helping you get back to living again. There should be no reason you are living your life in bed and missing out on all the activities with your family..

I wish you luck...[/QUOTE]
Thank you so much for your very quick replies. It surely gives me some options and things to think about.
I am on Zaniflex for the nerve pain given to me by my Neurologists. I do have numbness in my left foot, sometimes don't feel it at all. Everything you describe fits me to a T.
I understand the pain pump being a later type thing, which is really ok with me. Just want relief at all costs sometimes.
I knew the xray would be rather flimsy when it comes to really looking at my lumbar spine. I do have Osteoporosis, I don't know if that causes pain or not. I do have qieut a bit more information listed on the MRI, just listed the conclusion on the former submission. I can list everything said if you are up to reading it and trying to help me.

I really thought the ortho doc would be a route to look into and tomorrow is the day I am going to inquire about this. I do walk daily. Short walks, but walks never the less. I walk my dog at least 6 times a day. Just bought a new puppy and have others so they keep me on my feet.
I never just lay in bed. I do have a very hard time getting out of bed each and every time, so it makes very much since what you mentioned about it making it worse.

I have tried not using the Morphine, just to see if the pain is actually controlled somewhat with its use. I found out that the Morphine DOES help me function. I am absolutely crying in pain and can not walk without the Morphine. My PM Doc has done everything and the Morphine has not come easy.

After about two years of suffering in major pain, which they like to throw in Fibro for, I was hospitilized during an Adrenal Crisis. During the hospital stay the attending doctor put a Morphine patch on my shoulder. Of course I was so unaware of anything with the exception I had became completely pain free during my stay. Upon discharge I asked the doctor what he had done to resolve my pain I had suffered for two years and he replied all he did was put the Morphine Patch on my admittance. I was loopy and out of it. This has happened several times with one time having to call 911 by a family member. I remember nothing. That is the main reason i am seeing the Neurologists, referred by my local hospital.
My immune system is crap due to taking steroids, sometimes at higher doses due to the Addison's Disease. It just rains here but when it starts, it pours.

Let me know if I can list the entire MRI Report and see if you want to make a stab at it. I just don't want to bore you. i am not familiar with most of it so i am unsure what to put down or what you really would like to see. I have also been on Neurontin, Cymbalta, Flexeril (did not help), and recently on Baclofen. Unfortunately the Baclofen did help but I would find myself just falling asleep, very loopy, out of it. I can't do that. My son video taped me while I was on it, I remember nothing and i was sitting there talking to him, laughing and my eyes would just close and open, falling asleep so easily. So, I am super sensitive to these types of meds. i swell like a whale with Cymbalta, but it worked. I loved Cymbalta, felt stable and it did help with the pain. However, it caused too many side effects where the risks outweighed the good. My blood pressure and sugar levels goes through the roof on these meds, so it is not a win win for me. I was on 4 blood pressure meds while on these meds, lyrica, cymbalta, flexeril, Neurontin, and after stopping any or all of them, I no longer am pre-diabetic or have high blood pressure.

I am going to definately look into the doctors you suggested. I am really excited to have those requests. I really appreciate the help you both have submitted my way thus far. Believe me, it is going to be put in great use. I will keep posted waiting on more information. Thank you so very, very much. You have already helped me tons.

Elizabeth, Until we chat again. Thanks again so very very much





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