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Spinal Cord Disorders Message Board

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Hi Franjo,
thanks for responding. Well being a good nurse, who worked independently out in the community i have alot of supplies and testing materials here at home. So of course the first thing i did was a dip on my urine for infection. It was clear, no white cells, etc. I have had this problem off and on, it seems to coincide with increase of other symptoms. Neuro has told me it is common with the myelopathy at high level to have this urgency and frequency. So I guess I'll just have to deal with itb but it does drive me nuts.
One thing on the positive side, I used to wake up and have that awful pressure/pain and brutal spasms on the right upper neck and base of my skull. When I woke up with that , i would develope the brutal cervie headache. It usually left me unable to move for 1-2 days, no relief from pain meds. The Valium script from Chicago is working, when I get that feeling I take 10mg of Valium right away with an extra Morphine IR, and voila, The headache doesnt progress. Of course i'm a blob for the day, but not a blob in horrible pain. The feeling doesnt go away, it just doesnt increase. That is such a relief!
I'm sorry that you are having a pain increase, and your right about the meds. Help with the pain,but leave you not yourself. And for me barely functional.I dont find either way acceptable.
I have also had no paperwork from Chicago, and I wish it would hurry up and get here so I can start fighting for funding approval. I am like you and sick of living in limbo, with the proverbial axe hanging over my head. Sounds like your little man has the right idea, demand action and answers , funny , we all want that, but we grow up and become socially programmed into not voicing our demands so easily. God bless his little heart!
I can have a much more comfortable day, as long as i lay flat for most of it. Which like you I am getting a little sick of.
Have a good day, and I'll talk to you later.
Love mel
ps. I'm glad Charlotte finally got her myelogram results.Maybe she should go to Chicago! ;)
Hey Fran and Charlotte,
You know how I complain about the brutal cervie headaches. Okay, I can always tell when one is coming , i get that weirdspasm/pressure thing at the base of my skull and upper neck ,and then it spreads into the side of my face and head.Once it starts it keeps building , until it cripples me for a day or two. Okay, here is the good news. Neuro in Chicago switched me to Valium for spasms. Well for two days I have awakened with that feeling. I tried what he told me, took the 10mg of Valium(instead of the usual 5) and morphine ir, at the first sign, and lay down with the tens on. Guess what IT WORKS!!!! For the first time in almost three years, something works for it.It doesn't go away, I still feel like I'm on the verge of it, but it doesn't hit full blast. I'm so happy about this.
He explained that when that spasm hits a certain level , it starts to compress the ocipital nerve, so you get the neuralgia, but it can also interfere with the venous drainage in that area compounding the pressure. So the theory was, get the valium in at the beginning to prevent the spasm from progressing. And wahoo!!!it works.
Just had to share that with you.
I hope you have both had a good day, and have a great night of sleep.Charlotte,try Chicago, i know they reviewed my MRI's free of charge and then called with their impressions, and I made my appt.based on the findings. So you might want to touch base and get them to look at yours.
And Teri, give that little man of yours a hug for me, oh yeah, what is the little tigers name?
Look forward to hearing from you, Mel

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