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TMJ Disorder -TemporoMandibular Joint Message Board


TMJ Disorder -TemporoMandibular Joint Board Index


[QUOTE=IndyGirl1;5449213]Hi There,

You are not alone.. I know how you feel. Please don't give up... there is something/someone out there who will help you figure this out.

Have you seen a neurologist by chance? Burning sounds nerve related to me. I have lots of tingling from my cranial/facial nerves being irritated by my spasming muscles.. I just got referred to a neurology clinic to get evaluated.

I believe you said you felt like the popping was a muscle or ligament issue since your MRI of your TMJ discs came back normal... is that correct? have you seen a tmj specialist? Maybe a splint could help you... do you notice muscle problems in your neck or upper back?[/QUOTE]

Yeah, I saw 2 neurologists over a year ago. The one only gave me pills for headaches & didn't want to help me in any other way so I stopped seeing her. Than I went to someone else who was a lot more helpful & allowed me to get a brain MRI done to rule out anything really serious. It came back completely normal so since then I've been completely clueless as in what to do.

And yeah, it feels like the muscles around my ear area just don't feel right. Sometimes when I eat I get this weird stiffness feeling in my face muscles but I really don't get pain much. And yes that's correct I had a TMJ MRI done about a year & a half ago or so & it came back completely normal for that too. I've tried 3 different types of night guards & none of them have helped me. I think they actually make the clicking/popping sounds worse. I tried to get another sort of mouth guard made by my dentist a long while back but she didn't want to make me another one. That's the second dentist I talked to about it. And I saw 2 oral surgeons in recent years & they couldn't help me either. I kept going back to the one & he just gave me muscle relaxants but they didn't do anything. He also sent me to see a physical therapist & that didn't do anything & even the physical therapist was shocked the MRI came back normal since he thought something would show. So the oral surgeon after that basically just said to see how I do on my own which in other words he had no idea what to do anymore for me.

If it's an actual nerve issue what am I supposed to do for that though? I really do think it has to do with a nerve in my face or just really weak muscles for why I feel this way. The only issue is I literally have no clue what to do about it. I'm starting to feel like I have permanent damage if I haven't gotten better after all this time. I've tried pretty much everything I could think of yet I still have these issues.

And I do feel some muscle problems in my neck & the right side of my seems to have some sort of winged scapula. I don't really get pain though. That could have something to do with my face muscles or nerves?
[QUOTE=NJ321;5449236]Yeah, I saw 2 neurologists over a year ago. The one only gave me pills for headaches & didn't want to help me in any other way so I stopped seeing her. Than I went to someone else who was a lot more helpful & allowed me to get a brain MRI done to rule out anything really serious. It came back completely normal so since then I've been completely clueless as in what to do.

And yeah, it feels like the muscles around my ear area just don't feel right. Sometimes when I eat I get this weird stiffness feeling in my face muscles but I really don't get pain much. And yes that's correct I had a TMJ MRI done about a year & a half ago or so & it came back completely normal for that too. I've tried 3 different types of night guards & none of them have helped me. I think they actually make the clicking/popping sounds worse. I tried to get another sort of mouth guard made by my dentist a long while back but she didn't want to make me another one. That's the second dentist I talked to about it. And I saw 2 oral surgeons in recent years & they couldn't help me either. I kept going back to the one & he just gave me muscle relaxants but they didn't do anything. He also sent me to see a physical therapist & that didn't do anything & even the physical therapist was shocked the MRI came back normal since he thought something would show. So the oral surgeon after that basically just said to see how I do on my own which in other words he had no idea what to do anymore for me.

If it's an actual nerve issue what am I supposed to do for that though? I really do think it has to do with a nerve in my face or just really weak muscles for why I feel this way. The only issue is I literally have no clue what to do about it. I'm starting to feel like I have permanent damage if I haven't gotten better after all this time. I've tried pretty much everything I could think of yet I still have these issues.

And I do feel some muscle problems in my neck & the right side of my seems to have some sort of winged scapula. I don't really get pain though. That could have something to do with my face muscles or nerves?[/QUOTE]


Hi-
If you're having issues with your neck muscles on the same side as the jaw tightness, then maybe your neck is the culprit. The jaw and neck muscles work together so when one system is out of whack it effects the other. You could try and work with a PT to help strengthen/stretch your neck muscles. Have you ever had a neck injury?

There are many medications that work specifically to calm nerves. I know one is called Gabapentin/neurontin. There are many other medications as well... Lyrica, Amitriptilene*sp, etc. What headache medicine did your neurologist put you on?





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