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Urology Message Board

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Board Index > Urology | 0-9 A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

Before you read this response, I want to stress this point: [b]Don't panic.[/b] Chances are you'll both be well again soon, so keep that thought in your head. I say that because I've been told that my condition [i]may[/i] be psychological in nature, or perhaps at least magnifying the problem, and the last thing I want to do is inadvertently cause anyone else to go through what I've been going through.

Now that that's out of the way, I've been suffering from similar symptoms for nearly three months now. I've had a day or two where I [i]almost[/i] feel normal, but for the most part I've had no relief despite the numerous and varied drugs I've been on all this time. I've a detailed post currently on page two of these boards if you're interested, but suffice it to say, aside from the back ache, my symptoms are similar to yours, with the most nagging in my case being the urge to urinate.

I've seen four urologists now, gone through a whole battery of uncomfortable and costly tests (thank God for insurance), including two cystoscopies, been taking cipro for nearly two months now (knock on wood, no side effects in my case; about to switch to doxy on Monday, though), and been told to see everything from a physical therapist to a psychiatrist (seeing both next week... hooray...).

My primary urologist is very empathetic and has explained to me that IC is a possibility, although both cystos and bladder expansion they did seemed to indicate I was in the clear. Nevertheless, it remains a slim possibility, though he explained to me that it's very rare in men anyway, which may be why your doctor immediately wrote it off.

The next thing I think of is what I've been diagnosed with four times over now, which is prostatitis, although I have to admit to you, at this point, from everything I've gone through these past few months, prostatitis has quickly become urologist-speak to me for, "We don't really have any clue what's wrong with you, and we don't know how to fix it, either."

I've sort of come to grips with the possibility (and again I stress, [b]DON'T PANIC;[/b] this is just me getting this off my chest. I seriously doubt either of you guys are in the same boat) that I may never actually get over this, so about three weeks or so ago I returned as best I could to my old routines and am trying as hard as I can to ignore the symptoms, even staying away from this site until tonight so as not to be further reminded of my "condition." I also do a lot more on the weekends to keep my mind occupied and distracted on other things, hoping that it's all in my head and that if I forget about the discomfort long enough, it will eventually just go away on its on. Sadly, however, so far it hasn't seemed to help.

All that being said, IC is definitely still a possibility in your case; your doctor is wrong about it being a "myth" (although I wouldn't mind hearing his thoughts on "prostatitis"; I might actually agree with him if he shares a similar sentiment towards it). It could also be a case of anxiety, which is what I've been told may be what's wrong with me--hoping the psychiatrist and physical therapist can help--or just some bug that isn't showing up in your system, in which case you just need to find the right drug and stay on it long enough to knock it out.

Good luck to you both, and be sure to post if either of you improve. I imagine I have a pretty good idea of what you're both going through, so I'll be praying for you in the meantime; I know how much it sucks. And most of all, stay strong and think positive. Fight through the pain as best you can, get up in the morning, and go about as you normally would, and hopefully you'll have better results than I have thus far.

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