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Cancer: Uterine Message Board


Cancer: Uterine Board Index


Hi all, Just joined this site today to tell you my story. I have had trouble for years with discharge spotting after my menopause. I just didn't realize that it was that important and it is. I went to gyno for years begging for a hysterectomy and was told that after menopause this would all stop. I believed him. MISTAKE! He did an ablation because I had some hyperplasia which I didn't know was pre cancer. No one told me. He did the ablation, sent me home and all was well for about 6 yrs.
First of all I might tell you to find the best dr. you can. I didn't realize that my dr. was more concerned with his teeth and his looks and his younger female patients than he was about his older patients. I am 61 now and a bother I guess.
I started bleeding in May 2008, so went to my dr. who almost killed me doing an endometrial biopsy. She couldn't get one because it wasn't her specialty so she sent me to my regular gyno who I might add is more worried about baby delivery than anything else because the girls are younger. First he did the endometrial biopsy, said everything was fine, bleeding continued for weeks, called and called and they told me not to worry about it. It was not a little blood either, I had to wear a pad and change a couple times a day. Then he went in finally and found a polyp, took that out, and then he told me the results were fine and not to worry. Another 2 weeks went by and the bleeding continued. I laid in bed and just cried I knew it was something worse. Finally he did a d& c and said everything was fine. Called the office 2 weeks later and told them I was still bleeding. They told me not to worry about it. I did. FInally I told him I wanted a hysterectomy which he set up, he didn't want to do it, because the hospital was building a new surgery unit and he wanted to use it. Set the hysterectomy up for a month later, he only does 2 hysterectomys a week. WHy oh why didn't I go somewhere else. I trusted him. So from may till august the cancer continued to grow. Finally surgery day came and he did the surgery. He comes into my room afterward and tells me everything was clean and no cancer. I was so relieved, but relief is short lived in this world. The next day he strolled in the room with a somber face and said that the fda would get on him if he didn't tell me that they found cancer. Cancer nestled in among the many fibroids. I was so crushed. I trusted this man, I don't know why. So, then he tells me that it is stage 2 and it is encapsulated. Ha ha ha, what a joke he is. Turns out that this little baby wasn't encapsulated at all. It was quite large and had broken through the uterus and had gone into two lymph nodes to become that dreaded 3c. Did a cat scan on me and tested my liver. Then set me up with an oncologist in our town that did not make me feel much better. He sent me to the brand new cancer center in another town. It smelled from the paint and the cheap carpet and made me so sick when I went there. Anyway, met wonderful caring people there that set me up for the radiation. The dr. said that it depends on my attitude and getting out of the bed and fighting. They did 34 treatments of radiation that made me so sick I though I would surely die. The radiation to the stomach area makes you nauseous and I threw up the first treatment and they had to get me special pills to take. Insurance company doesn't like that at all. Had to fight with them too. Burns to my waist and belly button and other private areas became very bad. Got the cream sufladine and used that it helped. I am still healing, and have to go see the dr. on the 9th of dec. to see when I go for another cat scan. In the meantime I am trying home remedies that I have found online to see if they will help. I am not taking chemo, I watched a lot of people take it and they still passed on. I am not going to spend my life throwing up.
So, I pray everyday for all the people that have these diseases, all the movie stars, all the little kids and for God to cure all the diseases. I think I would rather have whoever is in charge of the disease line to forget the diseases and just give everyone an age limit like say 85. I know that isn't what will happen, but with all the money they get for cancer there won't be any cure soon for it. I am one of the lucky ones, I have so so insurance. We have to pay 850.00 a month for it which I believe is a rip off. Anyway, my warning to all of you out there is to keep on those drs. Men do not know what a womans body is like and they think most of us are quacks. Change to a different dr. until you get satisfaction. do not ignore any bleeding after menopause especially. I hope I have helped someone if you need any more advice I am hoping to help women out there before they get the bad news. It says right online. Over 60 yrs. of age and bleeding is ia sign of uterine cancer. I found it, you would think the dr. would know it. Sorry to be so long. santee:mad::confused:
Hi and thank you so much for giving me hope. I have been through a living hell. No one tells me anything, Monday I went for my 2 week check up after the radiation was finished and I was supposed to be set up for cat scan. Instead he set me up for a pap test in 6 weeks. I don't understand that. I am so afraid that it is in other parts of my body and I know it is important to have a pap, he told me that will be where it shows up. I don't believe that either, since it went out of the uterus, did yours break through? He said cat scan in 6 months. I would rather have it now while our insurance will still cover it, the copay and everything here starts all over again in Jan. I am planning to be around for awhile, I have 13 grandchildren (most grown), but one little one that I had while his mother worked from 9wks. to 3yrs old and I love him so. He has seen so much tragedy in his little life and he misses seeing me. I need to get over the fatigue, is that normal after radiation? I feel so weak all the time. Anyway, bless you for telling me how well you are doing, enjoy your trips. I am going to go gamble this summer with my wonderful sisters who have stood by my side the whole time. That is if my husband does not spend all the money before summer ha ha ha. Thank you once again. santee245
Well, when I found out I just decided that my life was over. What wonderful people are on here and have given me a chance to see that life is not over with the diagnosis. My mother is in a nursing home and she misses my visits, I don't know if she misses me or not, but I went in last night to see her and she was happy just bossing me around. It took a lot of energy, but I see that I can not just lie in bed and wait. My daughter said I looked better. Thank you for all your encouragement. Only difference with yours and mine seems to be that they didn't take lymph nodes out and won't go back in and take them out because they say to leave sleeping dogs lie. That is what the dr. said. Mine were the lymph nodes around the belly button or aortic as they say. I go back in 6 weeks for the pap and I am going to ask him if I can have the cat scan sooner. I know that the surgeon or gyno that operated on me made a lot of mistakes and delays waiting for the new surgery to open so he had a nice place to operate in and not looking at the uterus before he closed me up. I tell every woman that I see now, if you don't believe your dr. find one that will believe what you say. I also had a lot of endometriosis and adhesions. I thought it was funny that I never knew that either. You would think they would know that. He said he spent a lot of time chopping all that stuff away. I have private insurance too, he could have done the surgery right away, but he felt nothing was wrong since he had done other tests. I don't know if I will ever trust another dr. again. I do know that I like my oncologist though he is very caring and listens to everything I say. I hope you and your girlfriends have fun on your trips. I don't get to travel much at all, raised 6 kids, 5 boys and 1 girl and lots of grandkids while parents worked. Now seems like they are too busy for me. I do have wonderful sisters, the one in Arizona calls me almost every night. Thank goodness for cell phones.
Again, thank you and God Bless you and each and everyone diagnosed with cancer. I know one day they will find a cure. santee
Hi again, SANTEE! I am so glad your oncologist seems like a gem. It means so much when they LISTEN to what you say. Yes, it is amazing how long you've had things, and the doctors didn't have a clue. I hope you can get the Cat scan sooner, too. I usually say, "My deductible has been met for the year, and I can't assure my insurance for the next calendar year, so if you want to get paid for the test....." That usually gets them.

I know how you feel losing faith in the doctors. It seems there are a few gems out there and we have to find them -- like a needle in a haystack sometimes.

I'm so glad you and Cejay can compare your experiences. Yes, I hope you have ALOT of good quality time left that you can enjoy. The radiation I had after the breast cancer did tire me out for awhile. It takes awhile to get all your strength back. Things like fresh organic vegetable juice can do wonders. Like organic carrot juice. Powerful. I have to cut it with other juices, though, because straight carrot juice is hard for me to drink because it's so sweet.

I hope you can find something fun to enjoy after the radiation. I went horseback riding after my radiation because I had never done it before and suddenly felt empowered to 'go for broke' and do things I always wanted to do but always hesitated.

I hope the prayers are helping. :) I'm thinking maybe they are since your daughter was saying you are looking better.

Keep in touch and please let us know how everything is going.

Diane


[QUOTE=santee245;3820406]Well, when I found out I just decided that my life was over. What wonderful people are on here and have given me a chance to see that life is not over with the diagnosis. My mother is in a nursing home and she misses my visits, I don't know if she misses me or not, but I went in last night to see her and she was happy just bossing me around. It took a lot of energy, but I see that I can not just lie in bed and wait. My daughter said I looked better. Thank you for all your encouragement. Only difference with yours and mine seems to be that they didn't take lymph nodes out and won't go back in and take them out because they say to leave sleeping dogs lie. That is what the dr. said. Mine were the lymph nodes around the belly button or aortic as they say. I go back in 6 weeks for the pap and I am going to ask him if I can have the cat scan sooner. I know that the surgeon or gyno that operated on me made a lot of mistakes and delays waiting for the new surgery to open so he had a nice place to operate in and not looking at the uterus before he closed me up. I tell every woman that I see now, if you don't believe your dr. find one that will believe what you say. I also had a lot of endometriosis and adhesions. I thought it was funny that I never knew that either. You would think they would know that. He said he spent a lot of time chopping all that stuff away. I have private insurance too, he could have done the surgery right away, but he felt nothing was wrong since he had done other tests. I don't know if I will ever trust another dr. again. I do know that I like my oncologist though he is very caring and listens to everything I say. I hope you and your girlfriends have fun on your trips. I don't get to travel much at all, raised 6 kids, 5 boys and 1 girl and lots of grandkids while parents worked. Now seems like they are too busy for me. I do have wonderful sisters, the one in Arizona calls me almost every night. Thank goodness for cell phones.
Again, thank you and God Bless you and each and everyone diagnosed with cancer. I know one day they will find a cure. santee[/QUOTE]
Diane,

Whoa we are snowed in here, and still snowing. Live in the country and we are on the last road in the county and haven't been plowed out yet. Living in the country we are prepared and have plenty of food if I could eat it would be great. so far eggs are the only thing that I can eat and I am getting sick of them.

Went to the dr. on tuesday and he told me that the adhesions from the uterus had adheezed to the colon, well needless to say I am again at my wits end. So, is that the reason for the constipation? Who knows, he told me to take mira lax everyday and to walk at lest 20 min. a day. They have me set up for a pet scan on Feb. 4th. They are doing it sooner than planned. Might as well get it overwith and then get on with what ever has to take place next. I hope it isn't inside and hasn't spread.

I think they want you to go to the hospital in case it is something the surgical center can't handle. I wish I had gone to a different dr. instead of trusting the one I had. I have since found out he has screwed up more than one life around here. I think that is why he moved to our town to start out fresh and wreck the people in our town.

When is your surgery scheduled? I will be praying for you, I know how tough it is just worrying about this stuff. I need to just forget about it for awhile. My sister in AZ wants me to come out to visit, and if the pet scan is okay I might go. I am afraid of flying, but after this what's the difference. Let me know how it turns out for you if I don't hear from you. santee
Hi Santee,

Well I survived the out-patient surgery on Thursday. And without getting the intestines or bladder injured. Whew. I was a bit groggy, but I remember the doctor telling me she removed the ovary with the cyst and the fallopian tube and they looked very benign. That was good news. She said I had a fibroid in the uterus. That morning she had decided to do a D&C and just scrape everything out of the uterus and send it in for biopsy. I haven't heard back on those results yet.

Those surgical centers are so wonderful and you get excellent care. However, for things like this were there are incision(s) in the abdomen, it's not so great to have to get up and go home so soon after you wake up. I bled all over my clothes. Plus, the power went out (thankfully AFTER my surgery), and I had to walk down a flight of stairs to leave (and I had 3 incisions that were oozing). But I'm healing up better each day. Thank you so much for your prayers and thoughts -- they helped!!!

Are you having a little warmer weather now? I hope that snow melts a bit so you can get to your appointment on the 4th. Your husband sounds a bit like my grandfather who was also a farmer. He was like that with the animals, too. Yes, showing a little care now and then for their wife wouldn't kill them. Lord knows they want it when they are sick. I did try finding a guy who was caring and had feelings and I ended up spending 2 years with closeted gay guy. Now I don't trust any of them. I don't want someone cold but as soon as I see some sensitivity, I'm suspicious that he's gay and I don't want to go through that again. I think I'm happier just being with the animals. :)

Interesting about the stem cell ad in the doctor's office. Yes, why is it there if he feels so negatively about it? When you mentioned that ad, I think I remembered seeing one in another doctor's office recently. I don't remember which but I will be more aware in the waiting rooms next time.

LOL! about mammograms and the no-deodorant thing! I really think these heat imagining tests will replace all these cancer detectors (which give off radiation). You can get them, but you have to pay for them yourself. Cancer gives off heat, and they can detect cancer as small as a grain of sand, they say. However, the insurance companies will not accept a diagnosis from the heat imaging tests so if your breast shows a heat area, you will have to ask for a mammogram -- The mammo may not show the cancer yet and you have to wait until it does. Unless you can get the insurance to cover an MRI. This part is such a political game with people's lives. But I do think that eventually the people will demand things like the heat imaging units. It does the whole body. Nothing invasive.

That is very frightening what you went through with your surgery under your arm. I'm guessing they just put you in a 'twilight' for that or they would have had the tube down your throat. That's probably why you were able to come out of it like that. That should not have been a twilight, though, as under the arm is very sensitive. WHen I had the lumpectomy, they put me in a twilight --though I remember nothing. When they removed the lymph nodes under the armpit, they put me under deeper with a tube down my throat.

I see you are ahead of me with the baking soda and maple syrup. Yik, I didn't know you cook it and it tasted so nasty. That's hard to take. I hope you can get some organic stuff soon. That's all I'll put in my body now. My friend who is into Chinese Medicine and other modalities told me that once you have cancer, EVERYTHING going into your body should be organic from then on. But in my Veg Times magazine, they did have a list of some foods which are 'ok' to eat non-organic because they don't need sprays because the plant itself has its own protection -- so I guess they aren't really used for these crops -- (but how can yoube sure??). Asparagus was one of them. Glad you are making your own capsules! I've done the same thing with some things.

I will also pray for you that your pet scan comes out OK on the 4th so that you can get on that plane and go to Arizona for a little bit. I think Arizona can be such a healing place. It was for me many years ago. I'll think very good thoughts for your results on Wednesday -- and hoping you won't have to wait so long for them.

Stay warm and take care, Santee aka Carolyn! I hope you are feeling ok today.

Diane





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